Just two quick things, not so much for Wade but for other lurkers who might be trying to decide between their options:
On the 4-6 times a day thing: 1. it may be more but 2. even at that, for me it is no more frequently than I went to the bathroom to empty the bag when I had the ileostomy, and no more urgent. It generally takes the same amount of time when I'm in there. If you've got a loop ileo, Wade, chances are that that is/would be the same for you, though you could have surgery to switch to an end ileostomy and maybe empty less often.
92.3% of people with the pouch report "good" or "excellent" quality of life--that's more than any other medical treatment for UC, which I think GIs ought to mention sooner than they do. (And that's not screening out people who experience pouchitis or pouch failure--it includes them in the group from which that number is calculated.) The same is basically true of people with ileostomies, though they report lower satisfaction with body image. So it's probably about
even, as the researchers measure it.
PS PJ, when you say your doctor has no answers, do you mean your surgeon or your GI? If it's the GI, I would definitely go back to a surgeon. And if it's the surgeon, I would try another one--preferably someone with a lot of j-pouch experience. If you've got insurance and it covers it, I can highly recommend at least one at the Mayo Clinic in Minnesota, and have heard fantastic things about
others there, also.
Post Edited (Charlotte Gilman) : 12/10/2008 8:54:17 AM (GMT-7)