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Ponygirl51646
New Member


Date Joined Dec 2008
Total Posts : 2
   Posted 12/11/2008 3:51 AM (GMT -7)   
I have never posted anything before not sure where to start.  10 years ago i was diagnosed wth Corhns Disease.  It was found to late and a year later my doctor informed me that colostomy was the best bet.  I was sacred I was 21 and still dating live in a small communittee and didn't want to turn into the person they whisper about.  I just got married in August we have been together for 5 years and he has never had a problem with my bag.  We would like to start our family, but I'm not sure about pregnacy and my colonostomy.  Can anyone let me know what to expect?  What to worry about? Thank you and if you need more info let me know.

justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 12/11/2008 8:11 AM (GMT -7)   
Well, when you start to get big your stoma changes. It is such a pain b/c it's like starting all over looking for the bag with the right fit. You may need to use different bags/prep at different stages of your pregnancy. It would be prudent to carry extra supplies (if you don't already) and extra clothes in case of a blowout. I would guess that more than likely you will need a flat flange bag when your belly gets big. You can also make little cuts around the flange to help it lay flat on the belly. Also, you may need to use a mirror when changing b/c more than likely you won't be able to see your stoma. That's it really....nothing weird or horrible...just aggravating. However, after you give birth your stoma may be a problem. It really is one of those things were everyone is different. My stoma was really stretched out and I could never find a bag that worked well. At the time I had a temp. colostomy but a few years back I got a permanent ileostomy and have a new wonderful stoma!!--works like a charm and long wear time with the right bag. Had I thought about it I would have went to my surgeon sooner just to fix my stoma--live and learn. OH!--and you may want to veer people toward the side of your belly without the stoma.-- I have no idea why coworkers and such think it is ok to reach out touch a pregnant woman's belly! I hope this helps.

Have you been in remission since your surgery? --I'm a crohnie,too, and just wondered...

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 12/11/2008 8:47 AM (GMT -7)   

Pony Girl, Welcome to Healing Well! :-)

I'm a Crohnie, too, with a permanent ileostomy. I've never been pregnant, but there are a lot of women on here who have been. I just wanted to welcome you and say how nice it is to hear that your hubby has never had an issue with your ostomy. My hubby has been wonderful about mine, too, which has made all the difference for me.

Take care,

Cecilia


Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)


Ponygirl51646
New Member


Date Joined Dec 2008
Total Posts : 2
   Posted 12/11/2008 12:15 PM (GMT -7)   
Yes, I've been in remiission since my surgery. Thank You! For your help and info just knowing some of the possible problems helps out alot.
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