Need help for my toddler please!

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texas_star
New Member


Date Joined Dec 2008
Total Posts : 2
   Posted 12/11/2008 6:04 PM (GMT -7)   
Hi All,

I really and truly need some help. Any advice would appreciated.

My son has had his colon removed, and about 12 inches of his large intestine removed due to a condition called Hirschsprungs. He had complications from the ileostomy surgery and a portion of his intestine came out of his stoma when he was only about 5 months old. He had the ileostomy bag for about 6 months when he was an infant. We did the suave pull through reversal and then he was on TPN after the surgery, but he would lose all of the weight right when they would take him off the TPN, so we opted to keep him off and start him on regular foods. Thank God, he is now 2 years old and doing really well. He loves food, especially fruit! He will have many bowel movements throughout the day. He potty trained before he was 2, so its a little harder to monitor the true consistency of his stools. He is talking, but we don't know exactly what he is feeling. Sometimes he strains, and sometimes he doesn't.. Its usually always watery.

Recently he has been itching, itching, itching, all the time. The doctor has us use Lotrimin, but that helps for a few days, then the itching comes back. We also noticed red blood in one of his stools, so we have an appointment for the doctor tomorrow.

But in the meantime, I need your advice on helping him grow... I really need your help/advice on what could cause the constant itching and what foods should I try or avoid. He is underweight for his age, and we really want him to grow. He is doing great especially considering everything he's gone through.

Any advice will be appreciated.

Thank you!

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/11/2008 7:52 PM (GMT -7)   

The itching sounds like it might be a yeast infection.  An oral medication like Diflucan might be helpful.  Working with your son to keep the area dry will be important.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Charlotte Gilman
Regular Member


Date Joined May 2008
Total Posts : 100
   Posted 12/11/2008 7:56 PM (GMT -7)   
Is the itching in the anal area, or is it generalized?

The first thing that came to my mind in a kid that age, if it's anal itching, is pinworms. It might not be related to the Hirschsprung's at all! can you imagine, just a normal kid problem? LOL I have heard that it's common for kids with pinworms to itch hard enough that they cause bleeding. The doctor should be able to help you get it sorted if so (and even if not).

Unfortunately I don't have ideas on growth, except to say that you don't want to get into a power struggle with him about food. Maybe others will have better ideas.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 12/11/2008 8:20 PM (GMT -7)   
i dont have much advice about the itching, although charlotte's idea of the worms actually makes sense, if it's just around the bottom.
As for the growing, is the dr worried? Cause if not, don't worry about it. My son turned 3 in june and he weighs 30.5 pounds. So he is WAY underweight, but he's not unhealthy, he grows up, lol.
If you son is meeting his developmental milestones, walking, talking, motorskills, stuff like that, i wouldnt' worry too much.
They are too young to understand the concept that eating makes you grow, they just know when their belly feels funny they eat. Mine used to tell me that his belly felt sloshy and he thought some food would clear that up!
Anyway, i got off track, let him eat what he will, and dont' worry about the growing out thing, as long as he is on track mentally. good luck!

texas_star
New Member


Date Joined Dec 2008
Total Posts : 2
   Posted 12/11/2008 8:44 PM (GMT -7)   
Hey thank you both for the advice.
His itching is accompanied by small bumps. So, the doctor says its thrush. But sometimes his bottom has no bumps, and he still itches? I've read that it could be pruritus ani, but I'll check with the doctor on that and the pinworms too.

He is advanced mentally, so I wont worry too much about growing. I know he loves to eat everything. He loves all foods, but he doesn't understand that some may hurt his tummy. I guess since we aren't experiencing this ourselves, we don't truly know what he is going through, so this forum is so great. Because I can read other people's experiences, and try to relate what he is doing to what they've experienced. Its been a great help!
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