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Absbabs
Regular Member


Date Joined Sep 2008
Total Posts : 44
   Posted 12/22/2008 10:42 AM (GMT -7)   
Hello,

I saw you had posted on an old thread of mine when I was backing through the forum, trying to catch up on the last couple of months I've been a-wall. I also tried to locate a little bit of your history in the old threads, and saw your doctor gave a pelvic floor dysfunction diagnoses.

According to my surgeon, my pelvic floor dysfunction led to my severe constipation, which led to the full rectal prolapse. I am only 23 years old, and my surgeon actually said I was the youngest patient he has seen with the degree of prolapse I had developed. I never addressed this concern to my doctor, because I truthfully just always assumed the prolapse was internal hemorrhoids when I felt them emerge. But, in the end... My surgeon said I needed the rectopexy to fix the prolapse, and suggested the resection after removing my sigmoid (redundant) colon, hoping that this would alleviate some of the constipation problem. BUT, I had my surgery last Monday and I meet back with my surgeon in a couple of weeks, to discuss post-op business and also to decide how to tackle the pelvic floor dysfunction (which cannot be treated with surgery). So we are going to discuss when I should begin biofeedback and retraining my muscles. So, I'm not going to lie, it is discouraging to know that I had this major surgery and still have to address the original problem that led to the prolapse.

But, all I know, is that to date the only "fix" for pelvic floor dysfunction is biofeedback. Colectomies and other related surgeries are only for severe CI and other related diagnoses. I'm in no way a professional (and somebody can contend this if I'm wrong), but a colectomy will in no way fix pelvic floor dysfunction... unless perhaps you had the entire rectum removed, which would defeat the use of the dysfunctional muscles anyway, and had a ostomy bag put in place.

But, please... inform me more on your history because I'm sure I missed all of it when I was looking back. I'll try to be as helpful as I can, and maybe I can learn some stuff from you. :) Like I said, I went on a hiatus for awhile till my surgery was complete... And now that it is, I am questions galore. haha.

Hope all is well!
Abby

Diagnosed: September 2008- Rectal Prolapse w/ Chronic Constipation
Surgery: December 15, 2008- Abdominal Rectoplexy w/ Resection

"Life Goes On"


Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 12/23/2008 9:34 AM (GMT -7)   
Hi Abby!  I can relate to your story BIG TIME!!  I too have pelvic floor dysfunction and have had 2 surgeries to repair...both of them let go (the mesh disengaged)...I now have an ileostomy due to the chronic constipation I had.  I have a long story regarding this but wont go into it as this site is for ostomies.  But trust me I know where you are coming from and I wish you well with it.  It can be very discouraging like you said...Cheryl cry

Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 12/23/2008 9:50 AM (GMT -7)   
I just reread my post and I hadn't clarified how my pelvic floor dysfunction led to my ileostomy. When one of the mesh from my previous prolapse surgeries let go, it fell into my bowels and "grew" there.  It proceded to poke holes all through my bowels and everywhere else it had attached itself.  I even lost my poor appendix (lol) as it was full of holes also.  Long story shortened:  I had surgery in September/08 to remove all of the mesh and had to have a bowel resection and temp loop ileostomy.  That's what pelvic floor dysfunction led to in my case.  I was terribly constipated with this mesh all tangled up in there, but also from the pelvic floor dysfunction itself.  This mesh got infected and led to two fistulas which I had repaired also....Once again I reiterate:  it can be horribly frustrating when you have a surgery like you said, and realize it's not helping.  My last surgery for prolapse let go as well and the mesh from that had to be removed during my bowel resection.  Now I too am back to square one with this....I wish you the best Abby.  Keep your spirits up!! ....Cheryl :-)

Absbabs
Regular Member


Date Joined Sep 2008
Total Posts : 44
   Posted 12/23/2008 10:05 AM (GMT -7)   
Roddiesgirl~

Oh my gosh! You poor thing... I thought that was extremely rare for a resection connection to come apart?? And twice?? My doctor told me that disconnects only happen in like a very minute number of patients having undergone this procedure... If you had the mesh connections, I'm assuming you had an abdominal surgery? That is absolutely horrible how the mesh caused you so much additional trauma, and I'm sorry you had to go through such a troubling experience! So what is the next step for you?? I'm assuming you have another surgery in the future for the next stage of the ileostomy, correct? I do not know as much about that procedure...

It is terribly frustrating... I am hoping that my surgery gives me some relief. As I said, I just had my rectopexy surgery this past Monday, a little over a week ago.. So, I guess only time will tell. But, as I said... the pelvic floor dysfunction isn't going anywhere any time soon... And I heard biofeedback is only successful in 50% of the time.. which is even more discouraging..

But, I am very intrigued by your story... And I'm sorry you've had to go through so much! I wish you the best, as well!
Abby
23 yrs old
Currently in Georgia, but will always love Tennessee and be a VOLs girl

Diagnosed: September 2008- Rectal Prolapse w/ Chronic Constipation
Surgery: December 15, 2008- Abdominal Rectopexy w/ Resection

"Life Goes On"


tinkerbell2
Regular Member


Date Joined Jun 2009
Total Posts : 418
   Posted 12/25/2009 7:09 AM (GMT -7)   
Hi Ladies,

I was just researching this forum ( I usually post in the "total colectomy part xx" thread) anyways.. I just had surgery a couple weeks ago. I have suffered constipation for as long as I can recall. 21 yrs ago, after giving birth to a large bay, I suffered with total pelvic prolapse. 8 months ago, I decided it was time I addressed things, as the falling out parts started to freak me out! I had a stage ll prolapse of the uterus, vagina, bladder and rectum, plus a rectocele. I had a sacral colpopexy, rectopexy, and tvt sling, but after surgery-it was really almost impossible for me to have a BM!

After many, many tests.. they decided that I should have my redundant sigmoid removed, revise the rectopexy (rectum was still prolapsed) and fix the rectocele that came back because of the excessive straining post op. My colon surgeon was definitely concerned about the mesh, and shared a similar story like Roddiesgirl's ... I had Abdominal Rectopexy w/ Resection & perinoplasty/vaginal repair of the rectocle 2 weeks ago, and I'm feeling pretty good! I had a stool impaction while in the hospital, and current take 3 doses of MiraLax in order to keep my stool liquid like.

So, after reading your story Roddiesgirl, I'm so scared of this mesh throughout my body! There is no doubt my surgeon was pretty nervous about the mesh, but thankfully - he found no issues.. but then again, the mesh was put in just 8 months ago. How long ago did you have your prolapse repairs? What symtoms brought you back to the doctor's?

Abby, you are young! Did you have any injury during childbirth? I was just 28 when my prolapse happened, but they didn't really start to get bad until I was about 46.. I think losing hormones played a part of things getting worse. My pelvic floor descends sooo much, but there really isn't a surgery to fix that. I think the perinoplasty that was done might help this a bit... as the removed the damaged scar tissue in the perineum area and sewed the separated muscles back. I feel so afraid to strain too... and right now it is fairly easy to go because it is liquid. When I do have to go, it comes on pretty suddenly, but I can always make it to the bathroom.. and I go around 4-7 times a day.
~Jenise~


answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 12/25/2009 6:38 PM (GMT -7)   
I don't think the mesh is causing me problems. I just know when I had my hysterectomy that the doctor clipped a nerve to my rectum. Now I am in misery because I can't poop without alot of acrobats. And I am tired of living like this. I do have colonic inertia, all transit markers were in the ascending and transverse colon at 5 days...but the outlet problem is my main complaint. I can't push to poop any poop of any consistency...not water, semi-solid, solid, or diarrhea. It takes hours of me sitting on the toilet just to get out a teeny tiny amount of poop. My doctor already told me biofeedback has only about a 25% chance of helping me. I need some RELIEF from this life altering condition!

ih8u
Regular Member


Date Joined Feb 2008
Total Posts : 33
   Posted 5/9/2014 7:45 PM (GMT -7)   
Whelps... sorry for reviving an old thread. Just saw this thread addressed to me... all these years later after googling my symptoms and concerns. You're probably not around this forum any more, but if you ever happen to stumble upon this thread again years later...how are you doing with your rectopexy and biofeedback?

Sunny13
Veteran Member


Date Joined Feb 2014
Total Posts : 1118
   Posted 5/10/2014 1:16 PM (GMT -7)   
I know this thread is old, except for the comment yesterday, but i am very interested in talking to any of you that are still around/would like to talk.

I have had chronic constipation for basically my entire life. I am 35. Age 20, dx w/ Spina Bifida, which had caused severe nerve damage to bowel and bladder, obviously including pelvic floor. Had surgery on spinal cord. Treated for bladder problems (neurogenic bladder), had a bladder augment in '06. Never sought tx for bowel problems until Jan of this year. Meds don't work. Have to drink bowel prep stuff about 1x/week in order to have BM. I also have bowel incontinence, so things are really tricky.

GI doc said almost positive i will need ileostomy to give me some quality of life. But, we're trying biofeedback just in case it can help. Doubtful though. Just wants to try everything before recommending the surgery. Manometry testing showed extremely weak muscles, coordination is all messed up, and sensation is really poor. Pretty much expected that. I was also dx w/ a prolapsed uterus about 1-2 years ago. Not sure if/how that ties in.

GI doc wants to send me to Mayo for some test in the future. I'm glad i was able to get this doc, he is very kind and smart and understands that i have very little quality of life with the way things are now. Many days, i just want this process to hurry up, just do the surgery and let me get on with my life.

Anyway, enough rambling. I was really excited to see messages on here that i could relate to in a way.

Interested to hear more if anyone's out there...
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