random non-stomach pains after surgery

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spongebabe2pants
Regular Member


Date Joined Jun 2008
Total Posts : 94
   Posted 12/22/2008 6:41 PM (GMT -7)   
So first of all, I think my tailbone was severely bruised while I was on the operating table. It's been bugging me since I got home from my very first surgery and even more so since my reversal. I cannot sit for longer than 5 minutes without having to shift my weight.
 
Secondly, I think the prednisone I was on for almost 7 years straight caused some permanent damage. My knees have been hurting and they were alwas the main target when I was on, or weaning off of, prednisone.
 
Anyone experience this? Or have an opinion on the matter?
Ulcerative Colitis since December 2001 (age 15)
in remission for 6 months in 2002 followed by severely active disease
1st j-pouch surgery done on July 30, 2008


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 12/22/2008 7:31 PM (GMT -7)   
I have the same tail bone problem. I have had it for a long time, i think i broke my tail bone when i had my son, it's very common for that to happen to women, and then having the surgery just made it worse, and i have times where it doesn't bother me at all, and then other times where i sit for 2 minutes and it's killingme. Sorry to say, my son is 3 and a half and it hasn't gotten any better!
Not sure about the knees

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 12/22/2008 8:11 PM (GMT -7)   

The tailbone pain should be investigated.  I would pursue it until you have an answer.  I do not believe the position of the body on the OR table caused this.  The surgery position usually affects the lower back, not the tailbone.  The inability to sit in one position for more than 5 minutes is not normal.

The knee pain is normal from prednisone use and may or may not go away in time.  Seven years is a long time to be on pred and I think as you gather, you know there will be some long term damage for that.  You might be able to lessen the pain by hiring a trainer and doing some specific training to build up the muscles around the knee.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 12/22/2008 9:58 PM (GMT -7)   
I think what made my tailbone problem worse was that i had my bottom sewn shut, so i had to put the pressure on my upper butt instead of my actual butt.
But i thought of something for your knees. I got these things at wal-mart they are these bands that go around your knees, and they help keep your knees stablized. i can't remember the name, but they are not whole braces, and it says for jumper knees on it. They really really help my knees, i also found that doign some light leg weights has helped alot.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 12/25/2008 6:41 PM (GMT -7)   
I did have a fracture of my tailbone after surgery, after it was investigated by my surgeon at Cleveland Clinic. It is not uncommon for that to happen when they remove the rectum and sew you shut as he told me since they use a "drop away" (?) table. The steroids make the bones brittle anyway. Basically at the time (a long time ago) they told me they could special fit me with a brace but the ostomy would make it hard for the brace to fit comfortably. When I asked what the brace would do for me, other than not allow me to move in the position that I would feel pain, they told me it wouldn't cause any other damage not to get it. So I didn't. But it was good to know that I wasn't crazy and that there was a reason for the pain. It did last a few months, and I was really thin on top of it all and had no padding to sit on. AND it hurt to try to sit anyway on the incision. Hang in there.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


spongebabe2pants
Regular Member


Date Joined Jun 2008
Total Posts : 94
   Posted 12/25/2008 7:32 PM (GMT -7)   
Hmm, maybe I should look into the tailbone thing then. I didn't get all sewn up, but I also didn't get a good look at the table (thank you drugs). My back hurt quite a bit after the first surgery and I was told that can happen since it was such a long surgery. But the back pain went away in time, this butt pain hasn't. I had xrays not too long ago though and my tailbone looked fine. I didn't pay particular attention to it at the time, but there's no mention of anything on the report either.

Summer, I'll have to check out those knee things. I'll let you know if they work. I think I just need to get more active, all my joints have gotten lazy.
Ulcerative Colitis since December 2001 (age 15)
in remission for 6 months in 2002 followed by severely active disease
Meds taken with no result: 5asa, imuran/6mp, remicade, and of course prednisone, both oral and enemas. Also, many many herbal remadies.
1st j-pouch surgery done on July 30, 2008
2nd j-pouch surgery (ileostomy reversal) on November 14, 2008
Med and pain free :)


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 12/25/2008 8:14 PM (GMT -7)   
i found the knee things and they say mueller on them.
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