I have not posted for a few months but I noticed you had your perm.ileostomy in 1984. How have you coped all this time and do you ever get skin irratations? I have had mine for one year and 5 months and I sometimes feel depressed about it. I feel better and I am grateful for that but sometimes I want it to go away especially when the skin gets irratated. I teach aqua exercise and and work with people in the water who have had knee and hip replacements.
I am in the water 5 days a week and it is hard to keep from getting irratation. Do you have any tips? I would love to hear from you. Thanks, Fruitcake
Sorry it has taken me so long to respond. We have been out of town and i-net access was limited.
I have been very fortunate with respect to skin irritations so I won't be of much help with that question. But I don't teach aqua exercise either! One thing that I do all the time is to be sure that the back side of the pouch and the cloth-like portion of the wafer is dry after I shower by using a blow dryer on a low setting after I towel dry the area. It has just become a habit of sorts. I usually lay the blow dryer on the counter on a towel so it isn't real noisy in the bathroom and aim it in the right direction so as I am applying lotion to my arms and legs, the pouch is drying. I guess you could call that multi-tasking!!! Since I blow dry my hair too it's not any inconvenience for me at all.
Once in a while, my psoriasis breaks out around the edge of the cloth portion of the wafer. To treat that I make sure that the psoriasis is fully exposed by trimming the edges of the wafer and apply my RX ointment sparingly to that area. Seems to have worked pretty well for me.
Maybe some others will chime in on this subject with more suggestions.....
Best of luck to you and keep in touch,
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery