hi TDR ,
it's so nice to meet you. i'm so sorry to read about all the troubles you've been through and still do. sounds like you got it bad .
i'm 35 yrs. old and i have colonic inertia as well. i've been having it for 15 yrs. now, and now i'm on my way for a solution (hopefully) - a colectomy. finally, after 15 yrs. i found drs. that listen to me and willing to help me and i'm so thankful for that.
as to your storry, it sounds to me like you not only have colonic inertia and rectal prolapse, but you have an enterocele as well. as far as i know, it's a condition where the small bowls like droped and sitting on your pelvic and block the stool from passasin.
i had a prolapse and rectocele repair as well in 06/2007 and it didn't help, well, it helped a little bit, cause now i can have relief with the laxatives (lots and lots of them), but before that even the laxatives didn't help, but it's not enough in order to fix the prob. of constipation, b/c the prob. with CI is that the colon is soooooooo slow and it's not enough to have the rectum repaired as long as the colon doesn't function. our colon can't push the stool foreward. my drs. explained to me that it's b/c there's a damage to the nerves in there, therefore it's like a handicapped organ, and yes, they also told me they don't know why it happens/what causes it, and the only solution is a colectomy.
i'm scared, cause i feel my rectum, although the repair i had, is starting to deteriorate again and if the rectum doesn't function well, then the colectomy may be useless and i may need a bag for the rest of my life.... i really hope i'm wrong and i won't need one.
i too spend 5-6 hrs. every morning in order to create a small bm and i don't have a life at all. half of the day i'm bound to my home and the other half i'm at work struggling with the pain and bloating. if i don't make the effort to have some kind of a bm, then the pain is unbearable and i can't function at all. i'm so tired of being like this for so many yrs. and i want a solution. i can't live like this anymore and even if i end up with a bag, then so be it. it will be better than how i'm doing now.
BUT, don't get me wrong, i really don't want you to get scared, b/c i've read about tens of women who had this surgery for the same reason and only 3-4 of them ended up with an ileostomy - what i mean to say is that the chance this could happen is very little and in 90% of the cases it doesn't happen and the results are usually good (i hope i stressed that enough), so hopefully we can be optimistic, cause it's possible that my fears are not justified.
please join us at the "TOTAL COLECTOMY PART 20" thread, that's where all the girls with CI are posting. and i also recommend you to read the older parts total colectomy parts 1-19 as well - there's a wealth of information there and you can learn sooooooooo much from reading about tens of wonderful women who had the same prob. as we do and had the colectomy. reading their storry can provide you with lots of knowlege and to know how to prepare youself for the surgery.
good luck to you and please keep us posted in the "TOTAL COLECTOMY PART 20" thread.