any suggestions??

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pepperann27
Regular Member


Date Joined Dec 2008
Total Posts : 147
   Posted 12/29/2008 2:10 PM (GMT -7)   
confused
I was wondering if anyone knows about any new medicine, or any new treatments, or anything new to help with pain?
thanks, Dusti

Diagnosed with colonic inertia at 13 years old, had my colon removed

Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.

Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have.

If you want to know more, just ask me!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 12/30/2008 5:59 AM (GMT -7)   
What kind of pain? Where and how bad on a scale of 1-10, 10 being worst?
(Gosh, I sound like a doctor's office now!)
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


pepperann27
Regular Member


Date Joined Dec 2008
Total Posts : 147
   Posted 12/30/2008 6:37 PM (GMT -7)   
abdominal pain - mid abdomen, right this minute its maybe a 3.....usually it between 4 and 5
thanks, Dusti

Diagnosed with colonic inertia at 13 years old, had my colon removed.
Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.
Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have. I am 27 now.

If you want to know more, just ask me!


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 12/30/2008 7:04 PM (GMT -7)   
Do you think that the pain is related to the ileostomy?   It could be scar tissue (adhesions) too.  They can be REALLY painful.  Is this something that just came on all of a sudden?  Finally, have you spoken to your GI about it?

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


pepperann27
Regular Member


Date Joined Dec 2008
Total Posts : 147
   Posted 12/30/2008 8:22 PM (GMT -7)   
yes my GI knows. I have had pain for a long time, in fact there is a pain clinic I went to, but after a while they ran out of things to try. Bummer huh?
thanks, Dusti

Diagnosed with colonic inertia at 13 years old, had my colon removed.
Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.
Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have. I am 27 now.

If you want to know more, just ask me!


amy476
Regular Member


Date Joined Jan 2009
Total Posts : 37
   Posted 1/6/2009 9:22 PM (GMT -7)   
what all have your tried? Sux the pain clinic cant help you out. Wish I could help more. Keep us posted and let us know how you are doing.
Amy
Amy,
taking care of daughter w/ Crohn's since 12-04
MD's switched her diagnosis to Ulcerative Colitis 10-08
her medications: Remicade, imuran, benyl, levisin, humara, TPN (in hospital and home) home iv antibiotics
Multiple admissions for flares, sepsis
2 ports inserted/removed
Total Colectomy 11-11-08
revision of anastomosis 12-08
Temporary ileostomy 1-2-09
 
Thanks for all the support!


LesaJT
Regular Member


Date Joined Nov 2008
Total Posts : 86
   Posted 1/17/2009 8:47 AM (GMT -7)   
Hi. I have had the same problems with pain. I vomit from Opiates. Maybe try Tramadol or get this Fentanal patches or Marinal (which is a drivitive of Marijauna) They give this to cancer patients...Might help..Docs are reluctant to prescribe...Be firm about the pain and the need for something. They finally told me to deal with it and take Ibuprofin...I found another doctor. In Colorado we have Medical Marijauna and can get approved for this. Just some thoughts.
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