What a day!! Savannah is up walking!! It was so good to see her get going!!
They decreased her continious morphine today, but seems to be doing ok in the pain department, more nausea today, but think its related to all the movement. Had a little scare, thought stool was coming out of incision site, but it was the way colostomy was placed. The stoma nurse came today, she will be back tomorrow, it is nice to have an appliance on that lasts more than 24 hours!
We will talk more about products in the am. It was a typical Monday for her as well. Lots of new people to see.
Anyway, just wanted to let you know. And Bella, we will be in touch. Both Savannah and I have AIM, its on the desk top at home, so I will let you know when we are there.( Hopefully end of the week!!)
taking care of daughter w/ Crohn's since 12-04
MD's switched her diagnosis to Ulcerative Colitis 10-08
her medications: Remicade, imuran, benyl, levisin, humara, TPN (in hospital and home) home iv antibiotics
Multiple admissions for flares, sepsis
2 ports inserted/removed
Total Colectomy 11-11-08
revision of anastomosis 12-08
Temporary ileostomy 1-2-09
Thanks for all the support!