Abdominal Swelling

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Regular Member

Date Joined Oct 2008
Total Posts : 262
   Posted 1/4/2009 9:27 AM (GMT -7)   
I have been having swelling on my right side just above the stoma site.  It doesn't really hurt, but I can almost feel it when it starts to swell.  It turns into a large, rather firm lump just above the stoma itself.  I know I can be really neurotic and paranoid where my ileostomy is concerned, but have any of you ever had the same thing happen??  It started about 2 weeks ago, or at least that's when I first noticed it. Could it possibly be caused by jeans that are too tight fitting??  I haven't had a follow up appointment with a surgeon since my surgery in September because I have moved to a new city and was waiting to be connected to a Dr in the area.  I have an appointment on Jan 16th so I am anxious to hear what he has to say, and if he can give me any indication of when my surgery can be reversed.  Thank you all for your support.....Cheryl 

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 1/4/2009 10:04 AM (GMT -7)   

Is the swelling related to the digestion of food? In other words, does it swell only after eating meals, or not related to food intake?
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Regular Member

Date Joined Oct 2008
Total Posts : 262
   Posted 1/4/2009 10:13 AM (GMT -7)   
Hi Peggy...no it's not related to food intake.  It happens any time at all.  I can feel like a pulling sensation with a slight burning when it is swelling.  When I lie down on my back, I can't feel it anymore, just when I am standing.  Thanks for your quick reply, I am kind of bothered about it....Cheryl cry

Regular Member

Date Joined Jul 2007
Total Posts : 275
   Posted 1/4/2009 10:54 AM (GMT -7)   
Could it be a hernia? It goes down when you lie down ... and isn't necessarily painful. My tummy is flat when I wake up but by the time I go to bed, I've got an extra breast!
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.

Regular Member

Date Joined Oct 2008
Total Posts : 262
   Posted 1/4/2009 12:45 PM (GMT -7)   
I don't think it's a hernia.  I have had 3 abdominal hernias repaired  before and this is nothing like they were!  I guess I'll just have to suck it up and wait until I can see the surgeon on the 16th. Thanks for your replies though...Cheryl

Regular Member

Date Joined Aug 2008
Total Posts : 367
   Posted 1/4/2009 12:49 PM (GMT -7)   
Hey Cheryl, I'm sorry to hear about your swelling. Does it hurt? I can't wait until your appointment on the 16th. I know you can't either; I want to see what he says about getting your reversal. I hope my experience hasn't scared you. I still would have the reversal even knowing about all these complications. To me it's worth it not to have a bag. I keep praying nothing goes wrong and she won't have to go back in and give me another ileostomy. I'm so glad we've been able to go through this together.
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - 3/13/07
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Take Down Surgery Scheduled - December 15, 2008
The whole world is at your feet; so paint your toenails Red!

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