She is walking!!

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Regular Member

Date Joined Jan 2009
Total Posts : 37
   Posted 1/5/2009 10:51 PM (GMT -6)   
She got out of the bed today.... twice... the ostomy nurse came in and assessed her sking. recommended a few things to try. We did have a  scare because her incision is still draining some. We thought that a fistula was formed and poop was coming out of her incision!! Not good... Anyway, he came into the room and his feelings were that it was just abdominal ascites and not poop. We were very relieved!
Been taking ya'lls advice and she has been up and walking today. around the nurses station and such. I know it feels much better than being in bed all day.
We will continue to keep you guys posted!
taking care of daughter w/ Crohn's since 12-04
MD's switched her diagnosis to Ulcerative Colitis 10-08
her medications: Remicade, imuran, benyl, levisin, humara, TPN (in hospital and home) home iv antibiotics
Multiple admissions for flares, sepsis
2 ports inserted/removed
Total Colectomy 11-11-08
revision of anastomosis 12-08
Temporary ileostomy 1-2-09
Thanks for all the support!

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 1/6/2009 4:46 AM (GMT -6)   

GREAT news!   Tell her to keep it up, that she is doing wonderfully, and looking forward to hearing from her when she gets home soon. 

So, are you sleeping any better now that this ordeal is on it's way to being resolved for now?  I hope you are and can wind down a bit....  You are probably exhausted.

Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 1/6/2009 7:11 AM (GMT -6)   
That is GREAT to hear!!! Tell her we are all taking the steps with her and she's on the road to being a very healthy kid:)

Regular Member

Date Joined Dec 2008
Total Posts : 104
   Posted 1/6/2009 12:44 PM (GMT -6)   
I was out of it for the first four days but as soon as i woke up i was in a regular room and since i couldnt really walk standing straight up (dont flip out and be scared if she cant kinda hurts a little bc I had to stretch my stomach muscles back out..its really tight for a while) I stood up and bent my head over the sink and my mom washed my hair for me =) So thats a tip for ya! And i felt so yucky because it had been forever since I took a shower but since i wasnt aloud to take a shower when i was in the hospital (it might be different for her bc i was on prednisone and it takes me longer to heal bc i was on it for awhile so i wasnt aloud to get the stitches wet) i sat on the edge of the tub and my mom gave me a sponge bath. Even if she just washed my face with a wet washcloth it made me feel better. So thats another tip.
Tell your daughter that even though its going to tough sometimes, itll be worth it in the end! Good Luck with everything!
17, SENIOR in high school
Dx with Ulcerative Colitis on March 18,2008
Tried what seemed like every medicine there is..nothing worked
Step1 Ileostomy on Nov.19,2008..waiting on Step2 =)
The past is history, the future is a mystery. Today is a gift, that's why it's called the present.

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