Who owns the colon when surgery done?

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Regular Member

Date Joined Dec 2007
Total Posts : 82
   Posted 1/9/2009 5:05 PM (GMT -6)   
I know this is weird question but I have been in a research study and wonder if they will get my colon when it is taken out? I certainly don't want it but would I be notified if the researchers get it? Will I have to give permission? I would give permission but I want to give it, not have colon given without my knowledge. The researchers and surgeon know each other.

I'll be so glad to get this thing out of me.

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 1/9/2009 5:12 PM (GMT -6)   
Your colon will be bottled and saved in a warehouse for 7 years. I think they are kept for litigation reasons but after seven years they are incinerated.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Regular Member

Date Joined Jul 2007
Total Posts : 275
   Posted 1/9/2009 5:30 PM (GMT -6)   
Wow! Maybe I could go visit mine ... I miss it.
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.

Regular Member

Date Joined Jun 2007
Total Posts : 303
   Posted 1/9/2009 5:52 PM (GMT -6)   
Oh no, poor little Collie bottled up in a warehouse. I miss her, too. She really did try to be well.

Regular Member

Date Joined Apr 2008
Total Posts : 163
   Posted 1/9/2009 6:02 PM (GMT -6)   
Minutes before surgery, I signed mine over to my surgeon, who is a researcher.
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Proctofoam, Entocort, Remicade, Humira
10/10/08 colon removed, temporary ileostomy
11/10/08 FINALLY off prednisone after 18 months
2nd of 3 surgeries planned for Jan '09 to form j-pouch

vette guy
Veteran Member

Date Joined Nov 2006
Total Posts : 650
   Posted 1/9/2009 8:42 PM (GMT -6)   
This post kinda reminds me of my old college days. I used to work in the cafeteria of a local hospital, which was in the basement. When we would take out the garbage, and visitors would use the service elevator by mistake, one of us would say to the other "try and make sure no arms and legs fall out of the garbage bags this time"! Man, just remembering the looks on some of their faces still cracks me up!

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 1/10/2009 2:56 AM (GMT -6)   
VG - that's cruel!!
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 1/10/2009 7:38 AM (GMT -6)   
I wish I could say that I miss my colon, but I really don't. There was no hope for her recovery, so she's in a much better place - in a glass jar in a warehouse!
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)

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