traveling on a bus....

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dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 1/11/2009 10:35 PM (GMT -7)   
I may be going to Louisville, KY by bus in February. This will be approximately 10 hours, give or take. My ileostomy was the result of emergency surgery on 10/31/08 (happy halloween!!!) I am still having problems figuring out what causes me major diarrhea, and what wont cause problems. I take 2 Immodium, when I start  having major problems, and usually eat some bread. I can take anything I want on the bus to eat, except alcohol. Which wouldn't be a problem, since I don't drink. <G> My concern is making a HUGE mess in the bathroom on the bus,or having a leak, and not being able to resolve it. I'm still not real good at replacing my appliance. I go to wound care 3 times a week, and they change it twice a week currently for me. I am open to suggestions.

badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 1/12/2009 7:40 AM (GMT -7)   
I think Jen was right on your other thread. You need to find a better system. Maybe use an Eakin seal with it too. I had a hard time finding the right one, but once I did, my 'leaking life' got MUCH better. Apples slow things down for me quite a bit. Plus I take codiene for diarrhea. I am sure others have suggestions. I also think you need to learn to take care of changing it yourself as soon as possible since I am assuming your wound care nurse won't be with you in Louisville! You can do it! Good luck!
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 1/12/2009 7:50 AM (GMT -7)   
I'm using an eakin seal, paste strips, and paste underneath my appliance. It has a convex wafer, and belt with it. I'm going to see if I can get the cut out from her today, to take home with me, so I have something to go by. My biggest problem is getting the hole cut the right size and all.

badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 1/12/2009 10:04 AM (GMT -7)   
Sometimes less is more. It seems like a lot of stuff to have under your wafer ... Keep in mind that your stoma will shrink after time so you will always be 'measuring' it for awhile. Most appliances come with a circle guide to measure it with....
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 1/12/2009 11:18 AM (GMT -7)   
thank you! my stoma is oval shaped vs a round circle. Nancy gave me the pattern today, to use to cut out the hole should I have to change it tuesday night, plus extra supplies. I dread traveling more than anything. I've figured out most of the foods that are "problem" foods for me. Chinese and milk products are the biggies. Chinese is one of my favorites!!

badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 1/12/2009 1:02 PM (GMT -7)   
Before I finally figured out what system works good for me, I went on a 4 day retreat with 5 other gals. I brought 5 bags with me and everyone of them leaked! The last one was on our way home so 5 hours away from home I ended up at an emergency room on a Sunday hoping they could give me a change and be on my way. 4 hours later they did. Whew! And wow did I have good friends! Now that I have found 'the one' I camp, travel via airplanes, cars and boats! There is a great book called "Yes We Can! - Advice on Traveling With an Ostomy and Tips for Everyday Living" by Barbara Kupfer. It's pretty good.
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/12/2009 2:00 PM (GMT -7)   
your ostomy is still new so the frequency will porbably slow after a while, it takes a couple of months for your body to get back together.
anyway it does sound like you got too much stuff under there! also, after you change try a hair dryer to warm it up for a minute.

dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 1/12/2009 5:26 PM (GMT -7)   
I'll be looking for that book tomorrow. I have to work tomorrow night, and am concerned about leaking. I have several sets of supplies, and will be at the hospital, so I can get some there also.

dilatante
Regular Member


Date Joined Jan 2009
Total Posts : 125
   Posted 1/12/2009 5:27 PM (GMT -7)   
I'm going to get a back brace or something tomorrow, to help support the ostomy, and hopefully prevent leakage.
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