illeostomy/reversal then illeostomy, again

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Chad DeLong
New Member

Date Joined Jan 2009
Total Posts : 2
   Posted 1/12/2009 7:07 PM (GMT -7)   
Has anyone had an illeostomy then reversed and then faced complications and had the reversal done to have the illeostomy again?
this has happened to me and i am thinking o haveing the reversal again to re connect to the j pouch.
i am wondering what risks are involved if i have complications again?
diagnosed 9-2006
surgery 10-06
reversal surgeries in 2007
illeostomy, again 12-2008

Regular Member

Date Joined Dec 2008
Total Posts : 147
   Posted 1/12/2009 7:26 PM (GMT -7)   
I have, I think they tried reversing it twice but ended up with the ostomy again. But you never know, it could work great for you.
What were you diagnosed with? If you don't mind me asking
thanks, Dusti

Diagnosed with colonic inertia at 13 years old, had my colon removed.
Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.
Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have. I am 27 now.

If you want to know more, just ask me!

New Member

Date Joined Jan 2009
Total Posts : 2
   Posted 1/13/2009 12:41 AM (GMT -7)   
i have had a emergency ilestomy since i was 23 and have never come to terms with it, i even gave it a name (sidney) but i find it rules my life. i find i can't work as i wiork in mental health on a secure unit. driving a car hurts and going out with friends for dinner or drink is very stressful and tiring please some one i need some advice on how to improve my energy levels as i used to be very active and now feel really down and sluggish

Forum Moderator

Date Joined Feb 2006
Total Posts : 5695
   Posted 1/13/2009 8:02 AM (GMT -7)   
Yes. You can meet them at

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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