those with colonic inertia

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

pepperann27
Regular Member


Date Joined Dec 2008
Total Posts : 147
   Posted 1/12/2009 8:22 PM (GMT -6)   
I was just wondering if any of you were born with cerebral palsy? Because I was and we were wondering if it had anything to do with that...they could know more now than when I was diagnosed 14 years ago when I was 13 though.
If any of you want to email me, go right ahead I would love to talk to someone who has colonic inertia, my email address is in my profile cool turn
thanks, Dusti

Diagnosed with colonic inertia at 13 years old, had my colon removed.
Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.
Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have. I am 27 now.

If you want to know more, just ask me!


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 1/13/2009 10:19 AM (GMT -6)   
hi Dusti, i wasn't born with cerebral palsy. what do you mean you were born with cerebral palsy? what kind of inabilities do you have?
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction


pepperann27
Regular Member


Date Joined Dec 2008
Total Posts : 147
   Posted 1/14/2009 1:42 PM (GMT -6)   
Do you know what Cerebral Palsy is? I was diagnosed with it as a baby, I was born VERY VERY limp and blue, my parents thought that I was dead, but I wasn't   :-)   so with ALOT of therapy I now can walk and talk just like another person, actually if I didnt tell anyone, no one would know, thats how mild it is, but we thought it was related because of the problems with the muscles thats make the colon move, but we have never gotten a definate awnser for that, so I was just curious if anyone else who has colonic inertia also has cerebral palsy :-)
thanks, Dusti

Diagnosed with colonic inertia at 13 years old, had my colon removed.
Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.
Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have. I am 27 now.
If you want to know more, just ask me!


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 1/14/2009 2:06 PM (GMT -6)   
i didn't know at first, but i looked it up in the dictionary... anyway, i'm so amazed, i'm sorry, i had no idea you were having such problems, Dusti. though i'm glad you were NOT dead as your parents thought you were....

but you know, it is very interesting, cause after all, drs. still don't know how to explain CI and why it happens to some ppl. i never saw anyone on this board mention having this kind of prob., but it could be that in your case it is related to the Cerebral Palsy.. what did all of your drs. over the years say? did they have a clue whether it is related or not?

i think CI can be caused for all kinds of reasons and there's a chance your's is cerebral palsy.

the more you tell us about youself, Dusti, the more i realize what a strong person you are!! you've really been through a lot.

take care and stay in touch, o.k?
Hodaya
 
06/05/2007 - STARR procedure 
colonic inertia w/ pelvic floor dysfunction

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, June 18, 2018 3:21 AM (GMT -6)
There are a total of 2,972,709 posts in 326,017 threads.
View Active Threads


Who's Online
This forum has 160848 registered members. Please welcome our newest member, cythiacythia.
295 Guest(s), 5 Registered Member(s) are currently online.  Details
Froggy88, Alicethenut, The Dude Abides, Sherrine, Another UC Mum