Your daugher will need biopsies of her pouch on an every 1-2 year basis. Those biopsies check for cancer as even though our risk for cancer is much reduced we still have a small portion (cuff) left of old tissue. You can have the biopsies performed by either her surgeon or her GI. I choose to have my surgeon do the biopsies as I feel more confident of his pouch experience. I have not seen my GI since having jpouch surgery 7 years ago.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free