I thought that those of us who have ostomies could say whats good and maybe whats hard about them, because I have read alot of things on here about people who are aprehensive about having an ostomy, and maybe it could help some people...
I also was scared about having one, in fact it took me about 9 months to decide to get it done, but now I am thankful I have it, because I was in alot of pain, I still have pain but not as much as I did, I guess what I think it hard sometimes is when I am somewhere and it leaks or starts to smell, in fact when I worked at a preschool for handicapped kids, the clip fell off and all the stuff in the bag fell out, it happened 2 times, it was so embarassing but the ladies I worked with were very nice about it and halped me, but I think that had to do with the kind of clip I was using, I use a different one now
If anyone has any questions about ostomies, please feel free to ask, you can also email me.
Diagnosed with colonic inertia at 13 years old, had my colon removed.
Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.
Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have. I am 27 now.
If you want to know more, just ask me!