Ileostomy Reversal Opposite problem than most people

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New Member

Date Joined Jan 2009
Total Posts : 2
   Posted 1/16/2009 11:23 AM (GMT -7)   
Hi I am new to the forum.  Been looking for some help.
I was diagnosed with colo/rectal cancer in march at the age of 42.  I was first treated with radiation and Xeloda(chemo pill) which did alot of damage to my insides.  Then they did surgery took out about a foot of my retum and colon and then gave me an ileostomy so my insides could heal. Then I did another bout of chemo. For precaution.
December 30th I had a reversal.  And now the problems begin. First they had to take out 8 inches of my small intestine because they found more damage from the radiation and then he conneted it to my colon.
 Instead of the diarrhea most people seem to deal with mine is the opposite.  I don't think I am really constipated but eveing time when my BM's hit is a nightmare.  The best way to describe it is like there is a ball in there needing to come out but only the size of  my little finger comes out a little at a time.  I am running for hours trying to rid myself of this.  I am not sure if my muscles are just not working right or what.
Or if the radiation shrunk my passage ways.  The dr has checked me and said that  I don't have any blockage or stricutres.
I have lost 13 pounds in 2 weeks because I am barley eating because of the nighttime night mare.
Has anyone else out there had my problem?? mad

Post Edited (mommysuesue) : 1/16/2009 12:39:48 PM (GMT-7)

Regular Member

Date Joined Nov 2007
Total Posts : 98
   Posted 1/16/2009 12:11 PM (GMT -7)   
Hi MommySueSue.  Welcome to HW!  Do you have a j-pouch?  I lost my colon and most of my rectum to UC at the age of 42 after suffering for several years and now have a j-pouch.  When I don't have diarrhea, my bms are about the size of fingers like you were saying.  I eat Metamucil wafers and take Immodium to get that much bulk out of them.  Not going is definitely not a problem for me, but often I feel like I have a lot to go and only a little comes out.  Usually, if I have the time to wait it out, it will eventually come.  I also find that things like caffeine and chocolate move things along faster, but I usually avoid them to prevent the "D."  There are probably other foods that will stimulate movement.  This is kind of weird and I haven't seen it from anyone else and my doctors don't understand it, but when I lean to one side (my left) or lie down on that side, it seems to stimulate my bowels and I have to go.  Your weightloss is concerning.  I know I probably didn't help you much, but I'm sure someone who can will come along soon.  The people on this forum are wonderful!  -Laura

New Member

Date Joined Jan 2009
Total Posts : 2
   Posted 1/16/2009 12:37 PM (GMT -7)   
No i don't have a j pouch. and my muscles were left intact. I guess since they have been asleep for 6 months they are being lazy. At least I am hoping. The dr did prescribe me B & O suppositories for spasms. I am gonna try one this evening and see if it helps. I have been eating prunes too. Thought maybe those would help. UGH what a way to live. I never thought I would ever ever say this but I am missing "the bag" lol lol
Oh and laying on your left side isn't weird at all. My mom told me about that trick too. I think the dr told her about it.
Thanks for replying :)
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