Posted 1/16/2009 9:42 PM (GMT -7)
I was so lost b4 my surgery too. I had all of those same questions you do. Kinda makes me laugh... :)
I was worried about stoma placing. I had an ET nurse mark it just in case they didn't the day of surgery, but it wore off. I asked my surgeons office about marking it b4 surgery and they acted like I was dumb and told me Dr. B knows where to put it, He does it all the time. I wasn't convinced, but they were right and it was almost exactly where the ET nurse marked. It had to be redone, and they put it almost exactly in the same location on the other side, and from the sound of it, they put it pretty much in the same location on everybody. Almost the level of belly button and a few inches to the side of it. BUT ask them anyway.
The Nausea/Vomiting/Lack of appetite:
I was so afraid that even after surgery, I'd still have all of this nausea that I had all the time with my u/c. It seemed too good to be true that it would go away. It was hard to convince myself that it was truly my colon making me that sick. But it was. I had some nausea in the hospital a few days post-op, but now I have none and I'm eating everything!
Yes it will have a stink. But it's poop. After I empty, the bathroom smells like I just went poop. Who cares. You won't be stinking up your whole house wherever you go, just when you empty or vent (fart). I don't really smell it much even in the shower-and today's shower without the bag, it was very active.
After my 2nd surgery, they removed more sm. intestine, and it didn't stink as much. the nurses told me it depended on which part of the intestine the stoma came off from made it smell differently, but nobody thought "oh she's on antibiotics to get rid of infection and that might have something to do with the no smell" b/c when I got off the antibiotics WHEW! But for me, it's not enough to treat.
It's the same as for a colonoscopy. For me it was always hard. I vomited with EVERY prep I did. Even the pill prep. So MISERABLE. Same with the surgery prep. BUT it's the last one you'll ever do. That thought got me through it.
I have a saggy belly from having a baby and lots of stretch marks YUCK. doesn't seem to bother it so far......
The hospital made sure I could tolerate whole foods b4 I was released. At first it was clear liquids, then whole liquids, then soft foods, then ANYTHING. And when you go that long without much to eat, Hospital food gets a five star rating!!!! (The best green beans and mashed potatoes I've ever had!)
I would stock up on soft things though, just in case, like pudding and rice, mashed potatoes, bananas, eggs, cake :)
Good Luck with everything and keep us posted,
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; pred. and pain meds, (ileostomy temporary....not so sure?)
"Things turn out the best for those who make the best of the way things turn out."