ohio, u mentioned it didnt work out and u got another stoma...did it have to be permanent? was it the same? ileo or did u have to get a colostomy the second time around? did u have options when it came time for the second surgery?
It wasn't permanent at that time. My surgeon did another Loop Ileo and luckily he could use the same spot so I didn't have another scar...He wouldn't do a permanent one at that time. One of the reasons I love him so much is he is really conservative.
Because my diagnosis is Crohn's a J-pouch was never an option. We also tried the "flap" (I forget the technical term!) surgery once but my body was just too diseased. I'm not sure if that is possible with a r/v fistula...
With the second Ileo, I was able to get the drainage under control for a short period of time. The combination of Cipro and Imuran helped that, but for me, it didn't last more than a year.
I also had three setons which had been there for years. They'd been removed once, while I was on Remicade, and they started to close nicely, but that too failed:( Just last year I went for a proctocolectomy and it's been a year and it is better than I could imagine.
I hope you get the answers you need to make your decision. It is a really tough personal one...always remember you're the one that has to be happy/comfortable with the outcome and sometimes that takes time.