Frequency of emptying bag vs j-pouch frequency?

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Probiotic
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Date Joined Mar 2007
Total Posts : 2832
   Posted 1/20/2009 8:46 PM (GMT -7)   
Dumb question perhaps, from a UCer (possibly indeterminate colitis though) who is getting close to surgery, is very physically active (sports, outdoors etc), and who spends a lot of time on the road.  Is it true that the frequency for emptying an ostomy bag and the pouch emptying frequency for a j-pouch are generally the same (4-6 if you believe the IBD surgery center literature, 6-10+ if one goes by what most people seem to post on forums, from my reading anyway), or does a permanent ostomy tend to have a lower frequency than a j-pouch?  Thanks...
 


Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
12.5ish mg pred, 100 mg Imuran TCM
Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO, TSO, hookworm, TSO again
Turmeric/circumin, boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade
 
 
 


tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 1/20/2009 10:10 PM (GMT -7)   
The end ileostomy (permanent) and Jpouch are both formed from the end of the small intestine so the frequency would be the same.

When I had my colon removed they formed an end ostomy, then when they formed the jpouch with the end, a loop ostomy was created from up higher in the small intestine which had much higher output. Some surgeons do this step to give the pouch time to heal before the final takedown.

I probably go to the bathroom anywhere from 6-10 times a day, sometimes less. Some jpouchers are prone to pouchitis (inflammation of the pouch) which can cause more frequency but can be controlled with antibiotics/probiotics.
Theresa

Originally diagnosed with CD in 1991
Now saying "Undetermined Colitis"
3 step Jpoucher as of 4-15-08


summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 1/20/2009 10:15 PM (GMT -7)   
i think it depends alot on the person Even though i do empty more than 6 times a day (i just do it when i pee and i pee all the time,lol) i could get by emptying it 6 times a day.

Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 1/21/2009 6:44 AM (GMT -7)   
Thanks, everyone. I guess "urgency" is completely different compared to a normie's (and certainly less than an IBDer with a colon) and is virtually non-existent with an ostomy bag except that one can feel the pressure, weight and risk of leakage at that point.
Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
12.5ish mg pred, 100 mg Imuran TCM
Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO, TSO, hookworm, TSO again
Turmeric/circumin, boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade
 
 
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/21/2009 7:07 AM (GMT -7)   
There is no urgency with a jpouch. Just like with a healthy rectum/colon, the jpoucher feels the sensation to empty.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


sfgiantsjo
Regular Member


Date Joined Feb 2007
Total Posts : 420
   Posted 1/21/2009 10:42 AM (GMT -7)   
I have no urgency with my jpouch...even a little less than I did with my ostomy. With the bag, I obviously didn't have an PHYSICAL urgency, but I got paranoid about emptying the bag, and was always checking it and rushing off to empty cause I didn't like how it felt when it got heavy.

With my jpouch, I can physically feel the urge to emtpy, and I know I can wait, so I usually just go when I normally have to pee. So I don't have any more bathroom trips than I had normally. Also, I always got up at night to empty the bag, And I sleep through the night every night with my jpouch.
If at first you do not succeed, then skydiving is surely not meant for you.


Jo - UC, total colectomy and ileostomy on August 24, 2007. Step 2 & ileostomy switched to left side - May 27, 2008, and take down August 8, 2008. Gallbladder removed December 5, 2008. LIFE IS GOOD.


Wade457
Regular Member


Date Joined Dec 2008
Total Posts : 91
   Posted 1/21/2009 11:01 AM (GMT -7)   
I've been using the bag for about a year. It depends on your body and how long it takes for it to digest the food you eat. That's something you'll have to find out on your own if you elect for surgery. Generally mine takes about 6-7 hours from the time I eat something until it comes out in the bag.

Some foods are a lot thicker coming out of the stoma (starches in paticular) than others (meats, high sugar foods) which are thinner.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/21/2009 11:32 AM (GMT -7)   
6 to 7 hours? really? sometimes i see stuff within an hour! thats good for you that it stays in there, lol.

Wade457
Regular Member


Date Joined Dec 2008
Total Posts : 91
   Posted 1/21/2009 1:12 PM (GMT -7)   
LOL that was a problem I had when I was up at 240 pounds. I'm 6' and after the surgery, I've been averaging about 180-185 pounds...

I've learned to better regulate what I eat, when I eat and how much I eat. Amazing how all it all works and matters...

spongebabe2pants
Regular Member


Date Joined Jun 2008
Total Posts : 94
   Posted 1/21/2009 1:51 PM (GMT -7)   
I agree with summer, it all depends on the person. When I had an ostomy I would empty it sometimes up to 10 times a day just because I hated when it filled up too much. With my J pouch I go 2x a day usually. Sometimes I'll go an extra time just because I already need to pee. I consider myself extremely lucky though, because from what I've read other people tend to go 5-10x a day. But again, even 5 times a day without urgency isn't so bad when you think about it. You're supposed to pee every 2 hours (does anyone actually do this?) so that's easily 5-6 times a day in the bathroom already.
Ulcerative Colitis since December 2001 (age 15)
in remission for 6 months in 2002 followed by severely active disease
Meds taken with no result: 5asa, imuran/6mp, remicade, and of course prednisone, both oral and enemas. Also, many many herbal remadies.
1st j-pouch surgery done on July 30, 2008
2nd j-pouch surgery (ileostomy reversal) on November 14, 2008
Med and pain free :)


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/21/2009 6:09 PM (GMT -7)   
summerstorm said...
6 to 7 hours? really? sometimes i see stuff within an hour! thats good for you that it stays in there, lol.
Me too, Summer.  Wow, 6-7 hours would be cause for alarm for me ... blockage!!!  But, I am healthy and just have to eat more!
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 1/21/2009 9:02 PM (GMT -7)   
i can believe going to pee every 2 hours! sometimes i go every 20 minutes, lol. Esp if am somewhere where its hard to get to the bathroom then i always gotta pee, lol.

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 1/23/2009 3:17 AM (GMT -7)   
I would love to have the urgency to PEE!!! I had it while I was pregnant and little did I know that I would ever miss that!!! : )

Thanks for having this conversation...it's lessened some of my concerns regarding the perm. ileo I'll be receiving in two weeks from today!!! Wow. How exciting!!!!
Dx-May 2007  Asacol-2400mg bid  Prednisone-20mg  Remicade-5 Tx
Paxil-40mg  Prilosec-bid  Multivitamin  Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet!  I appreciate the small things in life...the little joys that occur every second of every day.  Though we struggle and have crazy complications, nothing can over ride our love and happiness.
Surgery is scheduled for February 6th!!!  : )   Yea!!!!!!!!!!

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