Welcome! I also had Crohn's with r-v fistulas and think you would be very happy with the results if you had the whole shebang removed. I had it done in October 2006 at age 36, and it has been so wonderful to be done with the pain, the drainage, the meds, the doctor visits, the hospital stays, and the urge to go 20+ times a day! I am completely healthy now and wish I would have done it years earlier.
If you had your rectum removed, your butt would look the same, except you wouldn't have a hole back there anymore. You wouldn't need it, since you'd have an ileostomy, which, in my honest opinion, is not a big deal. It's soooo much better than being sick.
Please ask us any questions you have. We're here for you!
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)