My stoma is flat...please help!!!

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RITAS
Regular Member


Date Joined Feb 2006
Total Posts : 140
   Posted 1/22/2009 10:54 AM (GMT -7)   
I've been having a lot of leakage problems with my wafer.  I currently the Hollister moldables cut to size because my stoma doesn't pop out as much it's on the flat side and it's a little oval.  I used the paste and eakin seals but nothing seems to help.  I'm always changing every other day.   My skin is very itchy and on the raw side.  Can anyone relate and if so which wafers and bags do u use?? My surgeon told me if i didn't find a solution and still have this problem then he might consider having surgery to fix it but he would rather not reopen my cuts.
 
Please help !!!!!! cry cry cry
Rita
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Bowl resection/Stoma repair June '08
6ft. intestine left
Currently trying to learn about the "new me"


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/22/2009 11:03 AM (GMT -7)   
It sounds like you need to use a convex wafer. I don't use Hollister, but I'm sure that they have something that is convex for you. This convex wafer will push the stoma out a bit by pushing in on the area right around it. I just started using a convex ring insert inside of the rim of my wafer a few years back to solve the same problem. Brought my wear time right back up to 7 days. I still use a bit of the Eakin Seal right around the wafer opening, like you use paste.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


RITAS
Regular Member


Date Joined Feb 2006
Total Posts : 140
   Posted 1/22/2009 11:19 AM (GMT -7)   
Really??? What do u use?? Maybe I can try it since u have the same problem. Also how do u use the ring insert??
Rita
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Bowl resection/Stoma repair June '08
6ft. intestine left
Currently trying to learn about the "new me"


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/22/2009 11:43 AM (GMT -7)   

RITAS--Definately try the convex wafers...I need them, too, and the mouldables just don't have enough strength in them to work in that capacity.  I use Hollister and their convexity wafer works great for me...I also use an Eakin Seal with it, and although I only get 4 days of wear time, it is because my stoma is on the stubby and retracts when active.

Order some samples, if you can, and test out a few different one.  Keep us posted!!

 


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 1/22/2009 2:01 PM (GMT -7)   
Rita,
I'll let Ohio76 take over from here since I don't use Hollister and she does. I use Convatec.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 1/22/2009 3:58 PM (GMT -7)   

My daughter used Hollister New Image convex wafers. Cut to size because her stoma was oval too. She used the stomahesive (never tried the eakin seals because the stomahesive worked). The best way for her to put it on was with my help. Her stomach was not flat and her stoma did not protrude very much (most of the time). She would lay on the bed. She would gently pull her skin towards her head (near the stoma) with her finger. I would gently push down on the underside of her stoma as I put her wafer on. This made her stoma stick out a bit more and allowed the wafer to slide around and under it. Hope this makes sense.

Try the convex wafer. It helped wonders.


--Mom of bratcat (17 years old) and nonamejames (20 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect!
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


RITAS
Regular Member


Date Joined Feb 2006
Total Posts : 140
   Posted 1/22/2009 4:08 PM (GMT -7)   
Thank u so much...yes makes total sense. I just ordered a box. Hopefully it will work. Thanx u guys. LOVE THIS SITE!!
Rita
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Bowl resection/Stoma repair June '08
6ft. intestine left
Currently trying to learn about the "new me"


Thumper54
New Member


Date Joined Aug 2013
Total Posts : 3
   Posted 8/28/2013 2:09 AM (GMT -7)   
Hi, my name is Jackie and this is the first post on this forum. I am so pleased I found it as I have been having issues with my new stoma. I have only had it for six months and, so far, have had major problems with leakage. I am changing my pouch every day, sometimes two or three times a day and my skin is raw and itchy and lumpy to the touch. I had to have a second surgery due to an abcess developing and this has caused a deep scar resulting in a crease. I think this crease is the cause of the leakage. I have tried filling the crease with stoma paste, Duo Derm and cutting small pieces of washers to no avail. I use a Salts Flexifit pouch now but they still only last a day at best. I am getting desperate and am constantly in tears as I feel too anxious to leave the house.

I would be very grateful for any advice or ideas that anyone might have as this is all new to me.

Regards Thumper

(Seashell)
Veteran Member


Date Joined Dec 2012
Total Posts : 675
   Posted 8/28/2013 2:41 AM (GMT -7)   
If you have skin creases or crevices due to scars (or other abdominal topography variations), I highly recommend the CyMed micro-skin wafer.

The CyMed product is a thin, highly flexible wafer (akin to clear kitchen plastic wrap) that conforms closely to any skin irregularity.

It is available as a flat wafer and with convexity. Convexity is achieved through use of a "washer" (CyMed lingo for convexity). You can order with 1 or 2 "washers" (mild or moderate convexity).

CyMed micro-skin is amazing, unlike any other wafer.
- Karen -

Thumper54
New Member


Date Joined Aug 2013
Total Posts : 3
   Posted 8/28/2013 10:10 AM (GMT -7)   
Hi Karen. Thank you for your advice. Unfortunately, when researching this product on the web, we received an e-mail from the company stating that they are not available in the U.K.

Regards Jackie

neverpopcorn
New Member


Date Joined Oct 2013
Total Posts : 2
   Posted 10/24/2013 8:47 PM (GMT -7)   
I too have a very short stoma along with a belly overhang above the stoma- resulting in a lot of pancaking and thus leaks. I now use a convex flange (Hollister) AND a belt- works great to keep the stoma in position. I also apply some olive oil to the inside of the bag before applying so that the stool more easily slides down rather than gathering at the stoma level. Hope some of that helps.

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 10/26/2013 3:59 PM (GMT -7)   
RITAS
I had my ileo surgery 6 years ago. My stoma was retracted and I had constant leaks. Even convex wafers did not help. Surgeon said "I can fix it". Surgery did not work. No change. about 4 years ago my cousin sent me some benzoin tincture. Not one leak since I started using it!!!!!!!!! I have the tincture in a bottle. It is available in Canada but not in the US. Swabs are available in the US. The swabs use the same ingredients. When you remove your wafer it leaves the skin clean. No sticky residue. I shave with an electric mustache trimmer before I clean the area. Clean with water and paper towel only. No soap or anything else. Dry with hair dryer. Apply tincture. Dry with hair dryer. Apply wafer. If you have open skin it will sting. The tincture helps to heal. The swabs are available from Edgepark.....800 321 0591. The tincture is waterproof. If you get it on anything else it can only be removed with alcohol. I wear two piece convatec natura durahesive convex wafer.

Dan
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