I can see why you're in a Debbie Downer mode, and that's okay! It's funny you named your attitude b/c I do mine as well. I have my Debbie Downer days too...Negative Nancy...and then I force myself to be Happy Hatti b/c I refuse to allow my disease to take control of everthing. I also have Pity Parties for 10 minutes and one a day...I time them. I have clients that like to focus on the negatives in their lives, which normally are not nearly as bad as they feel they are, and I am very strict with them having timed 10 minute parties too. : ) But that's just what I do...I also tell people I'm Negative Nancy that day just to give heads up. : )
Anyway, are you dehydrated? My nurse told me that fatigue and headache are some of the first signs...I get confused and overwhelmed with my symptoms and side effects b/c so much is going on. I started trying to drink more, which does not normally always happen, and then I down Ensure. I know our situations are still very different b/c I haven't had my surgery yet, but our bodies could still be reacting the same way to similar things. But I am so sorry to hear of the blood clot and that would very scary and I wish they could so something about it as of yesterday. However, I started feeling better after drinking Ensure 2-3 times a day and really trying to push the fluid. I'm sorry you are having trouble with consistency and whatnot. I haven't experienced that yet, but I know that Immodium doesn't really work for me either. That was another reason I want to throw in the towel...it used to buy me a few hours of doing something normal, but when it quit working I was like 'why not? If Remicade and prednisone don't work anymore why the heck should Immodium?!' : )
Anyway, it's good to vent and talk about your feelings...journaling is an amazing tool...and that's what's wonderful about online supports such as this is that you journal and get response. : ) So it's hopefully a win-win situation!
I hope you start feeling better soon!!!
: ) Robin
Dx-May 2007 Asacol-2400mg bid Prednisone-20mg Remicade-5 Tx
Paxil-40mg Prilosec-bid Multivitamin Moderate/Severe Pancolitis
28 year old Mommy of a 1 year old and a Wife for almost 2 years!
Life has never been so sweet! I appreciate the small things in life...the little joys that occur every second of every day. Though we struggle and have crazy complications, nothing can over ride our love and happiness.
Surgery is scheduled for February 6th!!! : ) Yea!!!!!!!!!!