We saw our daughter in recovery. She had an issue with a dry eye (they say it is common with long surgery). It felt irritated. And she was very dry in her mouth. As for other pain, she had an epidural and a pain button. We laughed because she learned to use that very, very fast! When we first saw her, she was on her back and had no energy to move. It took all her strength to find the pain button the nurse gave her but once she did, it was her lifeline. The first 24 hours were mostly drugged. She still complained about being extraordinarily thirsty (she wasn't allowed to drink). Drops helped her eye. She didn't have an NG tube when we saw her. She did complain a bit about her catheter (only for the last 12 hours or so that she had it). Of course she got her period then too so it was quite a mess. Luckily she had fabulous nurses who went above and beyond. Once the catheter was out, she became a different person. She had more trouble than many here when it came to walking. It knocked her out just to make it to the door of her room.
When the surgeon saw her after her surgery, he asked her "Don't you feel much better with your colon removed?" My daughter, being honest (and a bit cranky) said no. Her reasoning was she had been in remission at the time of her surgery. Still she didn't regret the surgery.
Her 2nd surgery was a breeze. She was smiling almost immediately, walking the floors, etc. She still feels this was the best decision for her.
BTW, I think your colon being good is like when you are in labor and going to the hospital. All of a sudden, the contractions stop (or slow down) and you think, maybe I'm not really in labor or maybe I'm not ready to have the baby.
--Mom of bratcat (17 years old) and nonamejames (20 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds!
11/10/08-Step 2 reconnect!
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp