back after total proctocolectomy

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Glad Bag
Veteran Member

Date Joined Mar 2007
Total Posts : 699
   Posted 1/26/2009 10:32 AM (GMT -7)   
Hi everyone,

I haven't been on the board in months, but I wanted to say I have recovered from my surgery back in Nov. They removed my entire colon, and made my ileostomy permanent. I no longer have a rear-end, in the traditional sense. The healing process was not simple, I have a bit more healing in what was the rectal area, and even this morning, I have a bit of abdominal discomfort, but I am confident it was the best choice for me, and am now off all Crohn's disease medications, except for a bit of painkillers here and there.

I will update you all more later, but I wanted to say hi, and thank you all for the support you gave when I was at my sickest.

- Nat aka Gladbag
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 1/26/2009 10:49 AM (GMT -7)   

Nat!  Glad to see you are back.  Yes, recovery is no walk in the park for that surgery.  Sometimes after all those years of disease it just takes longer:(  Don't push things and pain meds are okay when needed...I do think they help heal in the long run.

Keep us posted and remember that it does get better one day at a time!


Veteran Member

Date Joined Feb 2007
Total Posts : 788
   Posted 1/26/2009 12:42 PM (GMT -7)   
I'm glad all went well for you. Welcome back!

28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/29/08 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, zofran, immodium, lovonox, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 1/26/2009 5:37 PM (GMT -7)   

Hey Nat! It's so good to hear from you! :-)

I'm glad you decided to have the surgery, because you had really bad Crohn's with fistulas, just like I did. Once you're all healed up, I think you'll be very happy with the results.

Hey, did you ever move to Vegas or did you stay in California?

Please keep us posted on how you're doing!


Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)

Glad Bag
Veteran Member

Date Joined Mar 2007
Total Posts : 699
   Posted 1/26/2009 5:48 PM (GMT -7)   
Thanks Cecilia OHIO and Chassity!

still in California for now....good thing, I wouldn't want to be that far from my family just yet....but Vegas is still a distinct possibility for the future.
"I am he as you are he as you are me and we are all together!" - The Beatles

doesn't that just sound cool when you sing it?

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 1/27/2009 2:42 AM (GMT -7)   
Hey Nat!!! Well, it is about time that you let us know that you are still hanging out with us!

Good to hear that all was successful and that you are in healing mode. I am confident that you will be pain free once those nasty fistulas heal. Are you able to eat about anything yet? I know your surgery was quite a bit more complicated because of your issues going into the surgery.

So good to hear from you. Come hang out and update us often, k?
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Veteran Member

Date Joined Feb 2006
Total Posts : 629
   Posted 1/27/2009 7:04 PM (GMT -7)   
Welcome back dude!!

Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis

Regular Member

Date Joined Jun 2007
Total Posts : 302
   Posted 1/27/2009 7:40 PM (GMT -7)   
I have been wondering how you were doing. I am so glad that you are back on the board and doing well. blush

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 1/28/2009 4:13 PM (GMT -7)   
Just wait for the day you don't have to pack or protect that area when those fistulas are history...for me that was my celebration day!

New Member

Date Joined May 2008
Total Posts : 14
   Posted 1/29/2009 12:43 PM (GMT -7)   
Wonderful, sound about like my husbands deal - he had his first surgery in March last year.  Now he has developed a parastomal hernia and we've got to get that figured out - so please do yourself a favor and get a hernia belt right off - for physical therapy or anything stenous you may need to do!!!  We are looking at wether he will have to have a repair surgery and move the stoma!!   I am about ready to pull my hair out as he was just getting well, well, well.  Thanks for listening and please take the advice if you do anything strenous in your life!
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