out put is finally slower

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Veteran Member

Date Joined Feb 2007
Total Posts : 788
   Posted 1/26/2009 8:07 PM (GMT -6)   
Today has been a much better day. I've felt better in general. And my out put is finally slowing down!! I'm so glad. And I've never been happier for it to have a smell again skull It's not that bad, it just didn't stink when it was constantly flowing.

My PT is actually high (4.1-it's supposed to be 2-3) so no more lovonox shots. Woo Hoo!!! And it's a good thing b/c my hips are VERY bruised. They look like I've been hit by a car, on each side. and they keep bleeding spontaneously. Side effect of blood thinners. Kind of scary. Still don't know the results of my clotting panel, so I'm still hoping blood thiners are temporary.

BUT I am having these sharp pains in the middle of the night that won't go away until I get up. Sit or stand. "on a pain scale from 1-10.." They're about a 7. So they scare me. and my back is hurting too. I worry that when I lay down, the clot cuts of out flow to certain places and that is causing pain.....Idon't know......My Dr. said she she thought it could probably be scare tissue forming, but didn't feel comfortable not ordering another CT scan. So I gotta get another one. That'll be 4 in the last month. They don't bother me, but that is a bunch of radiation (or so I've been told).
I'll glad to make sure the clot is going away and there aren't more (I doubt there would be b/c my blood is OBVIOUSLY thin). But every time I get one, I think they won't find anything, and they do (abscesses and clot), sooo fingers crossed.

The ct scan probably won't be tomorrow (at least that's what the really RUDE radiology nurse said)

So I'll keep you posted-I hope you guys aren't getting sick of hearing about my "stuff." It's nice to have others who can relate to this stuff, who listen and care (or be really good at pretending to care wink )

28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/29/08 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, zofran, immodium, lovonox, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 1/27/2009 4:56 AM (GMT -6)   

Good luck on the cat scan. My fingers are crossed for you. And we do Really care, not pretending here.

And yes, from my experience, adhesions can be painful. But the thing with them is, you really can't see the adhesion itself on any scan or test. So that diagnosis is hard to make. Now, if the adhesion is causing a restriction in flow thru the intestine or something like that, they can see that on a scan or xray. But not the actual adhesion. That's how it has been explained to me anyway... like a ghost causing the problem.

Hang in there and best of luck to you....
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

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