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Regular Member

Date Joined Feb 2008
Total Posts : 115
   Posted 1/26/2009 8:50 PM (GMT -6)   
 I 'm going to have my stoma revised thie week. I'm really having trouble when it trys to emptys. I really hurt behind the stoma and get all bloated above it.
 I have had serval blockages this past month and really watch what I eat all the time. This has sure made my life hard, as I can't do much this way.
 I'm going in the hospital Thur. Jan.29 and will have the sergery Jan. 30. Hope it goes ok as I will be far from home and hope not to have any problems when I get home.
 Has anyone here ever had there stoma revised? How long does it take to heal? I hope it does't take months.
 Please let me here from someone.
  Thank You Jan,

Veteran Member

Date Joined Feb 2007
Total Posts : 788
   Posted 1/26/2009 9:21 PM (GMT -6)   
Well, I sort of had mine revised. It was an emergency, b/c the first one failed for whatever reason and intestinal contents leaked into my abdomen. Will they just change the type of ileostomy you have. I had an "end ileostomy" first and they changed the type to a "loop ileostomy." I liked the end ileostomy b/c it was small, but it failed, so therefore, I like the loop better. There is more blood flow to it and less likely to fail. They also removed some more intestine and switched sides of my ileostomy so mine is now on the left and that really confuses people. I actually had a nurse argue with me when I was in for my blood clot. She tried to convince me that No I had a colostomy b/c on the left side. nono I had to teach her some things. Shows how much she knows ....

The recovery was a bit harder the second time, but I had a laproscopic technique first and open second. PLUS I had all that infection to battle and I think without it, it would have been closer to recovery of the the first-weeks NOT months.

Good Luck,
I hope I helped some,
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/29/08 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, zofran, immodium, lovonox, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 1/27/2009 5:00 AM (GMT -6)   

I've never had a revision. Just wanted to let you know that I will be thinking of you. Hang in there girl!
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

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