Does anyone know if after your colon or dz is gone, will you still get extraintestinal symptoms? I had u/c and lots of ex-i symptoms (erythema nodosum, eye probs, arthritis, geographic tongue). I'm hoping they go away now-I'm still on steroids, so I don't know if they have b/c steroids always treat them. My Dr. can never answer this question. It's always we'll have to wait and see.
Also, I know that auto-immune dz has a higher risk of blood clots, but if I've been "cured" of my colitis, then do I still have that higher risk? What if I still have my rectum? Am I "cured" yet or not.
These may be tough questions. But y'all are so smart. And if you don't know, make something up so i feel better
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/29/08 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, zofran, immodium, lovonox, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)
"Things turn out the best for those who make the best of the way things turn out."