incision question

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Regular Member

Date Joined Feb 2008
Total Posts : 493
   Posted 1/30/2009 1:12 AM (GMT -6)   
Having trouble finding info on the incision for the proctocolectomy and ileostomy I'm having. I know it will be open and not laproscopy. I know that 2 surgeons will work on me at the same time. Is the "normal" incision from under the sternum straight down to the pelvis? Another location. Any thoughts would be appreciated.

I will have another chance to ask my surgeon but I'm so curious and scared. THANK YOU!
24+ years with Crohn's/colitis; fistulizing crohn's; pentasa; started humira 7/1/08;codeine for D; sometimes supplements: MSM, e, selenium, C, B complex, multi, iron; recent meds to get through til surgery include propranolol and xanax

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 1/30/2009 3:00 AM (GMT -6)   
My incisions have been nearly bone to bone (sternum to pelvice). But to be honest, my backside from rectum removal, hurt worse than the front side. And since I had prior surgery for resections, I already had a vertical scar, but they just cut it out when they did this last surgery.
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 1/30/2009 7:26 AM (GMT -6)   
I have a vertical scar bigger and uglier with each surgery (somewhere around 6 through that incision alone)...My surgeon stated a long time ago that the vertical incision is the "gold standard" for these surgeries.
As far as the backside pain, mine was minimal, compared to the staples.  The staples are the most irritating because when you move they pull...And, I had mine for more than 3 weeks...OUCH!

Veteran Member

Date Joined Jul 2007
Total Posts : 2765
   Posted 1/30/2009 7:57 AM (GMT -6)   
I have the vertical scar, too, from sternum to pelvis.
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again :)

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 1/30/2009 9:25 AM (GMT -6)   
The length of your incision is based on your physiology. Mine is from below my navel to the top of my pubic region, about 5-6" in length and that was for a total proctocolectomy with jpouch.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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