Lost My Navel.

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Regular Member

Date Joined Sep 2005
Total Posts : 89
   Posted 1/30/2009 7:43 PM (GMT -6)   
I had a lapro resection that went bad followed by an open incision 5 days later with an  ileostomy that has since been reversed.  I was in the hospital the first time for a month.  I was just glad to have survived and preoccupied with recovering for my reversal .  Now that I'm reversed I'm missing my navel. 
Does everybody with an open incision lose theirs?  I would have thought it wouldn't take much skill to create another one or is there another reason?  I wouldn't feel so bad about the scars if I still had a navel. 

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 1/30/2009 9:36 PM (GMT -6)   

No, not everyone loses their navel.  I had the traditional surgery and my scar runs from below my navel to the top of my pubic area; about 5-6 inches in length.  My surgeon goes to extra trouble to keep the navel because it can be very emotional for people to lose it.  But I do know that everyone has a different physiology which is why no incision lengths vary.


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Regular Member

Date Joined Sep 2007
Total Posts : 63
   Posted 1/30/2009 9:45 PM (GMT -6)   
I'm with you. My navel is gone too.... It was pretty strange at first but luckily I'm a pretty hairy guy so it's not as noticeable now.
29 year old male, UC diagnosed after bad flare in Summer 2005, quickly brought into remission by pred and salofalk. 2 years symptom free after that!!
Bad flare started summer 07 and led to emergency surgery June 08 after ruptured colon.

Previous UC meds.... Salofalk, Imuran, Remicade, Buscopan, Pantoloc, Prednisone, etc...

Currently living with and ostomy and completely med free!!

Veteran Member

Date Joined Feb 2007
Total Posts : 788
   Posted 1/30/2009 10:17 PM (GMT -6)   
My lapro also went bad and I had to have open emergency surgery. My belly button is so messed up. It's not gone, but it's way more shallow. It used to be pretty deep. It's more like a belly divot now. My belly's still sore and so I'm afraid to touch the divot. It still creeps me out. I'm afraid it won't feel like my old one felt, so I leave it alone. I used to have my belly button pierced, not that'd I'd even think of that after having a baby, but I did like having a normal one. So, I'm sad too.

28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/29/08 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, zofran, immodium, lovonox, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."

Regular Member

Date Joined Jan 2007
Total Posts : 74
   Posted 1/30/2009 11:43 PM (GMT -6)   
I luckily still have my belly button! I had a full incision and my surgeon went around my belly button. It is very slightly messed up (the scar runs around the side of it and healed a little funny) but I still have mine.
Diagnosed with UC 10/12/06
Daughter of Bennie
17 years old
Flared 3 times in a year and a half tried almost all medicines
Current Meds:None!!
JPouch Step 1 of 2 on July 3

Regular Member

Date Joined Aug 2008
Total Posts : 470
   Posted 1/30/2009 11:58 PM (GMT -6)   
I had an open surgery, my scar runs from just under the top of my rib cage to just above the pubic bone, it's quite long, but I still have navel :)and I have an extremely thin scar.  I was hoping my surgeon would cut along the scar from my spleen removal that I've had since childhood because it is very large in length and width, but he went right next to it so now I have two long scars next to each other but eventually the colectomy scar will barely be visible that's how thin it is :)

spleen/appendix/gall bladder  removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/ pancreatitis 3x's/2 knee surgeries-now need replacement/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08-
Am now down from 17 meds a day to 8 and VERY healthy:)
There's always hope and things will get better :)

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 1/31/2009 12:27 AM (GMT -6)   
i have half my belly button, but i am actually going to try to get it sewn shut cause it keeps getting all red and icky cause the wafer goes over it,

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 1/31/2009 8:06 AM (GMT -6)   

I kept mine, even after many abdominal surgeries, but after a complication and a need for a second surgery within 1 week, it became almost unrecognizable.  Then after the next one, I lost it!  I am okay with it and when ever someone mentioned something about their bellybutton...piercings and things...I say "I wish I could, but I don't have one!"  I will admit that it takes a little getting used to but you can adjust.

Summerstorm--can you pull the skin apart to get wafer tape to stick in it, not over it?  The area that should be mine can get red and icky if I am not careful and cover it completely...but if I separate the skin and get the tape to go into it I am okay...just a thought!

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 1/31/2009 11:53 AM (GMT -6)   
well what actually covers mine is medical tape, cause i tape the top of my bag to my stomach. I tried doing what you suggested but then the tape didn't go far enough across to hold the bag down!
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