recoup questions

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Regular Member

Date Joined Feb 2008
Total Posts : 493
   Posted 2/1/2009 11:53 PM (GMT -6)   
Surgeon says to plan on being in the hospital for a week or so (again protocolectomy and ileostomy). My husband and I are lining up "coverage" at the hospital. I don't want my husband to get burned out so I've lined up my dad, brother, aunt, and uncle to take shifts the first 4 days. Then, I thought I might be ready for some visitors here and there. Am I right? Wrong?

-what will I be doing to recoup during the first 3-4 days in the hospital? Sleeping? Walking? Is there physical therapy? occupational therapy? Learning more about the ostomy? and how about after that

2--when I get home, same question.

any advice so very much appreciated.
24+ years with Crohn's/colitis; fistulizing crohn's; pentasa; started humira 7/1/08;codeine for D; sometimes supplements: MSM, e, selenium, C, B complex, multi, iron; recent meds to get through til surgery include propranolol and xanax

Veteran Member

Date Joined Feb 2007
Total Posts : 788
   Posted 2/2/2009 12:11 AM (GMT -6)   
YES! You're right.
That should answer everything.
The first day, you'll sleep; then you guessed it. they'll want you to walk in a couple days, and do little exercises out of bed. The more you do out of bed, the faster your gut wakes up and the faster you'll heal!
And I did watch a lot of TV. and I made a lot of phone calls. to friends, coworkers, etc. to update my recovery.
Oh and I brought my lap top. The hospitals have wireless internet.
I had lots of visitors. It wore me out. By my third hosp. stay, I told people to not come. Only you can judge when you'll want them. Maybe have them call you first.
I thought I'd read, so I took my book. But I never opened it. Too much going on.

Oh and when you get home,
REST and let your hubby pamper you.
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/29/08 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, zofran, immodium, lovonox, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 2/2/2009 8:28 AM (GMT -6)   
At my hospital, we walk the next day...many times a day!!!

It is a personal thing to have visitors...I always tell people (even family members) not to visit. My husband/daughter would come for an hour or so, but I even encouraged them not to come every day.*** You're there to recover and sometimes having an endless stream of people can tire you out and take the energy you need to get better! You'll need that for walking:)

***I should also mention that I LIKED the nurses at my hospital and knew many of them from prevous surgeries and knew I'd be well cared for.

Is your sugery open or lapro? open is usually 5-7 days and lapro is much quicker. The stoma nurse starts coming in the day after surgery and will be in everyday after that...You don't usually get a "class" the first day, but they'll want to see some effort to learn abount your stoma. There is no PT for this surgery unless you have another issue that needs it. You will probably have a home health nurse come for 2-3 visits after you get home. They were a great confidence builder because it is a "support" when you have to change...I suggest doing the change yourself, just have them helps with the nerves and they can take over if needed!!

If you save the visits for when you are home, you can give your hubby a break, break up the day when there is less going on around you and maybe get waited on! By then you can usually hold a conversation since the pain meds have been tapered!!

Regular Member

Date Joined Jul 2007
Total Posts : 275
   Posted 2/2/2009 11:29 AM (GMT -6)   
I choose NOT to have visitors except my mom, significant other and daughter. To me it was a very private surgery and I don't like people to see me when I am in those darned hospital gowns! I wore everyone out BEFORE surgery with rides to chemo and radiation.

I brought a personal DVD player and lots of movies and the complete seasons of Will and Grace so I would get in a few giggles.

Yep. Everyone is right. They will have you up and walking very soon after your surgery. My ostomy nurse was there from the beginning. She changed it once and had me do it after that. My daughter, who is in her last year of nursing school is the only one who learned how to change it in case I could not. She also smuggled me in some real food. I hated the stuff they gave me! I brought a book too, but I couldn't focus enough from the pain meds but I was mighty glad I was on them!

I was in the hospital for 11 days but I was in ICU for a few days with fluid in my lungs.

Ohio is right. I really enjoyed the company when I got home. While I could pretty much take care of myself, I really liked the fact I got a few meals and a little pampering. It took about three weeks before I really felt like getting out and about but I did it big time and went on a 4 day fishing trip with my daughter!
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.

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