It sounds like time you got a new GI Dr. any way! Time to get another opinion.
Seriously, It's not like any one WANTS to have to go through all you've been through!
if another Dr. doesn't think surgery is right yet, then maybe they'll have other ideas for therapy. Something that WORKS!
I know what it's like to be turfed to other Dr.'s b/c you are a "difficult case to manage." Frustrating. Makes you bite your fingernails.
I had u/c, so my tale/tail is different (yes, pun intended)
but I think when you are at the point where you are begging the Dr.'s to Let you have surgery, it's time. You're the boss of your body. Ultimately, you're the one suffering and you're the one who knows your limits.
Good Luck with everything.
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/29/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)
"Things turn out the best for those who make the best of the way things turn out."