The flu and then some

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Regular Member

Date Joined Jul 2007
Total Posts : 280
   Posted 2/12/2009 11:36 PM (GMT -6)   
A little back track, I've been struggling with back pain since my surgeries and pouchitis since November. Recently had to quit taking Flagyl because it made me feel like I was being poisoned,weakness in my legs and I had no appetite (lost 10lbs I can't afford). Last week, I started Xifixan and felt so much better, until a couple days ago when I began having looser stools. I work in an ER and we had so many people coming in over the weekend with flu symptoms and one person suspected of having Cdiff, so I am overly careful with washing my hands, etc.

Tuesday I noticed that when I went to the bathroom it was like I was pouring a bucket of water into the toilet, but not much urine output. I continued at work, made dinner, and cleaned up around the house and by bed time I felt feverish and overall crappy. By 2:00 in the morning I woke up from back pain and my heart was racing and I knew I was already dehydrated. I tried to go back to sleep, but thoughts of a blockage, kidney stone, and the dehydration is only going to get worse kept me up, so I gave in and went to the ER.

I felt so much better after the first bag of saline, but the doc wanted to do a CT because of the back pain. Results were bilateral kidney stones (small-thank God) and a 7cm ovarian cyst (not so small). I finally told the doc that if he came in with another diagnosis I would throw the book at him! Kind of overwhelming when you thought a couple rounds of saline would make you feel better! Went home and spent the rest of the day in bed with my daughter who had stayed home from school because she had a fever and was throwing up sad Not much sleep due to waking up soaked from fever and crapping myself, and thanks to the vaginal ultrasound, a very angry period! Feeling a little better, I am at least able to sit up and walk around but look like I've been run over by a truck.

It depresses and angers me that I probably wouldn't have gotten this had the people WITH colons stayed home and just rode it out like I would have done. And how quickly this came on and brought me to my knees, how I don't want to be fragile. I hope to God that they can just drain the cyst and it doesn't mean another major surgery or organ removal! I drink so much water and make sure I am getting plenty of fluids, but I get kidney stones that I pray don't grow & multiply! And is this the reason for my back pain that I've been killing myself going to physical therapy for nothing? I really hoped that 2009 would be the year of healing for me, guess not.

Thanks for letting me vent , I feel guilty because I know there are others out there that have it much worse than I do, but I really needed to get it off my chest to those who understand.

Originally diagnosed with CD in 1991
Now saying "Undetermined Colitis"
3 step Jpoucher as of 4-15-08

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 2/13/2009 10:09 AM (GMT -6)   

Theresa, I am so sorry to hear you are having such a difficult time eyes    Venting here is always better than yelling at someone!  On the up side, at least you have the cause of your back pain...on the down side, you have the flu:(  I will keep my fingers crossed that the fix for the cyst is quick and easy, please keep us posted...

Veteran Member

Date Joined Feb 2007
Total Posts : 788
   Posted 2/13/2009 11:33 PM (GMT -6)   
Hey Theresa,
I had that horrible stomach bug last month too! OOhh it was BAD. It made me, my husband, and my baby sick. Then my parents and in-laws too. It wiped us all out. Especially me. The bag was just so much liquid for like a week. I would empty about every 1/2 hr!! I too went to the ER 'cause I thought I was dehydrated.
AND I also had a CT scan with incidental findings.
They found a blood clot.
So I thank GOD for my stomach flu!! And thank GOD your kidney stones and cysts were found!
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."

Regular Member

Date Joined Jul 2007
Total Posts : 280
   Posted 2/13/2009 11:41 PM (GMT -6)   
Thanks so much for the support, it really means a lot that I have others who know exactly what I'm going through. I feel better today both physically and mentally, but am still tired. I'm so glad that I've found this place, I really don't know if I could have gotten through the past year without it! yeah

Originally diagnosed with CD in 1991
Now saying "Undetermined Colitis"
3 step Jpoucher as of 4-15-08

Regular Member

Date Joined Aug 2008
Total Posts : 470
   Posted 2/14/2009 12:35 AM (GMT -6)   

Hi Theresa,

So sorry you are not feeling well; I kind of know how you feel about people coming around when they are sick & should just STAY home.  I teach 1st graders and soooooooo many of their parents give them "some medicine" before they come to school when they are running a fever, vomiting, diarrhea,have strep throat, etc. and as a result...well you know...I can't even tell you how many times I've had strep!  Anyway, what I wanted to say before I went off on a tangent is, I can feeeeeel your pain cry  .  I have chronic kidney stones and have had stones removed a couple of times because they can't pass. Do you see a urologist or a nephrologist? These drs have put me on some meds that are supposed to help; so far I haven't had a stone in a year which is good for me smilewinkgrin .  My stones aren't the common-calcium based, mine are uric acid based.

I also have a history of cysts, my first was an ovarian that burst when I was 15 then it inflamed my appendix, needless to say that was the 3rd of many surgeries to come.  Several of my cysts the dr has just watched and not done anything as long as I could tolerate the discomfort, but she finally did a total hysterectomy at age 29 taking the ovaries due to all of my cysts.

Wanted to let you know you are not alone.  I wish you better days ahead and I will keep you in my prayers .


spleen/appendix/gall bladder  removed/endometriosis/complete hysterectomy at 29/sinus surgery/numerous allergies & asthma/chronic kidney stones/ pancreatitis 3x's/2 knee surgeries-now need replacement/shoulder surgery w/ pins-which also froze following surgery/severe adhesions & scar tissue-stomach to chest-liver to ribs-colon to pelvis/severe IBS w/ constipation/subtotal colectomy 7/08-
Am now down from 17 meds a day to 8 and VERY healthy:)
There's always hope and things will get better :)

Veteran Member

Date Joined Aug 2007
Total Posts : 1998
   Posted 2/16/2009 8:49 AM (GMT -6)   

I hate having the flu as I am the one that usually suffers the worst with the high risk of dehydration. I do know how you are feeling and wish you the best. You know the drill, increase sodium to help retain the fluids, blah, blah blah.....
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 

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