A little back track, I've been struggling with back pain since my surgeries and pouchitis since November. Recently had to quit taking Flagyl because it made me feel like I was being poisoned,weakness in my legs and I had no appetite (lost 10lbs I can't afford). Last week, I started Xifixan and felt so much better, until a couple days ago when I began having looser stools. I work in an ER and we had so many people coming in over the weekend with flu symptoms and one person suspected of having Cdiff, so I am overly careful with washing my hands, etc.
Tuesday I noticed that when I went to the bathroom it was like I was pouring a bucket of water into the toilet, but not much urine output. I continued at work, made dinner, and cleaned up around the house and by bed time I felt feverish and overall crappy. By 2:00 in the morning I woke up from back pain and my heart was racing and I knew I was already dehydrated. I tried to go back to sleep, but thoughts of a blockage, kidney stone, and the dehydration is only going to get worse kept me up, so I gave in and went to the ER.
I felt so much better after the first bag of saline, but the doc wanted to do a CT because of the back pain. Results were bilateral kidney stones (small-thank God) and a 7cm ovarian cyst (not so small). I finally told the doc that if he came in with another diagnosis I would throw the book at him! Kind of overwhelming when you thought a couple rounds of saline would make you feel better! Went home and spent the rest of the day in bed with my daughter who had stayed home from school because she had a fever and was throwing up
Not much sleep due to waking up soaked from fever and crapping myself, and thanks to the vaginal ultrasound, a very angry period! Feeling a little better, I am at least able to sit up and walk around but look like I've been run over by a truck.
It depresses and angers me that I probably wouldn't have gotten this had the people WITH colons stayed home and just rode it out like I would have done. And how quickly this came on and brought me to my knees, how I don't want to be fragile. I hope to God that they can just drain the cyst and it doesn't mean another major surgery or organ removal! I drink so much water and make sure I am getting plenty of fluids, but I get kidney stones that I pray don't grow & multiply! And is this the reason for my back pain that I've been killing myself going to physical therapy for nothing? I really hoped that 2009 would be the year of healing for me, guess not.
Thanks for letting me vent , I feel guilty because I know there are others out there that have it much worse than I do, but I really needed to get it off my chest to those who understand.
Originally diagnosed with CD in 1991
Now saying "Undetermined Colitis"
3 step Jpoucher as of 4-15-08