2nd failed attempt at colostomy reversal

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

maine
Regular Member


Date Joined Jan 2008
Total Posts : 38
   Posted 2/13/2009 2:17 PM (GMT -7)   
 
 
  HI THERE
 
I HAVENT WRITTEN IN A WHILE....EVERYTHING WAS GOING VERY WELL AND THEN I WENT FOR 2ND TRY AT REVERSAL JAN 20TH, DOC COULD NOT DO IT.
 
  IN OCT 07 I HAD A PERFORATED SIGMOID COLON AND A MASSIVE INFECTION FOLLOWED, LUCKY TO BE ALIVE.  DOC TELLS ME MY COLON IS FINE BUT THE PROBLEM IS HE CANT GET TO THE RECTAL STUMP BECAUSE OF ADHESIONS.  HE ALMOST HAD IT BUT COULD NOT SEE ENOUGH TO CONTINUE SO HE ELECTED TO STOP RATHER THAN DOING ANY DAMAGE.
 
HAS ANYONE OUT THERE HAD MORE THAN 2 ATTEMPTS AT REVERSAL AND ACTUALLY DID GET REVERSED?  I PLAN ON SEEING A COLO RECTAL SPECIALIST IN THE FALL...I CANT EVEN THINK about DOING THIS AGAIN UNTIL NEXT YEAR! IF HE SAYS IM STUCK WITH THIS THEN I GUESS THATS IT BUT I REALLY HOPE I CAN BE REVERSED SOMEDAY..ANYONE HAVE ANY THOUGHTS OR
SUGGESTIONS?  THANKS FOR LISTENING
 
DIANE FROM MAINE

Roddiesgirl
Regular Member


Date Joined Oct 2008
Total Posts : 262
   Posted 2/13/2009 2:48 PM (GMT -7)   
I'm sorry you are going through all of this.  I have no insight for you as my situation is completely different.  Someone will be along that can identify.  Best of luck to you!...Cheryl
Hysterectomy 1998
Diagnosed IBS 2000
Vaginal Prolapse Surgery 2001
3 Hernia Repairs, 2004
Repeat Vaginal Prolapse Surgery 2006 (the mesh from previous prolapse surgery had let go and fallen into my bowels)...
Removal of mesh from bowels (it was piercing holes all through my bowels and appendix and cecum, causing 2 fistulas and heavy bleeding vaginally and rectally)...mesh was removed, two pieces of large bowel removed and resectioned with a loop ileostomy. 2008
 
I have underlying connective tissue disorder (Ehlers Danloss Syndrome) which is the reason for the two failed surgeries)
 Reversal surgery scheduled for end of March/09


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5696
   Posted 2/13/2009 2:56 PM (GMT -7)   
I think your best shot is to try and find the most experienced CR surgeon you can. You might have to leave state in order to find one. There are some great surgeons in NYC as well as the Cleveland Clinic in Ohio is tops.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/13/2009 6:31 PM (GMT -7)   
Diane, I agree with suebear...get to a specialist, where ever that may be! I will vouch for the Cleveland Clinic...they've done all my surgeries in the last 11 years. Plus there are many in New York that you could choose from and they'd be closer to you.

Maybe send your files to a few places and see what they think, meet with them and make a decision at that point. Just because your doc (I am assuming he's a general surgeon) couldn't do it doesn't mean it cannot be done by a specialist. You may not even have to wait a year!

Good luck and keep us posted.

maine
Regular Member


Date Joined Jan 2008
Total Posts : 38
   Posted 2/14/2009 1:11 PM (GMT -7)   
HI ALL!

thank you for your input...i have heard of the cleveland clinic...but will insurance companies tipically let you go so out of network? i sure cant afford to pay out of pocket....what have been your expierences???


diane from maine

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/15/2009 7:55 PM (GMT -7)   
You'd have to check with your insurance company...it might be worth sending your records to someone for their opinion and then go from there...why deal with your insurance company if the attachment isn't an option.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 2/16/2009 6:45 AM (GMT -7)   
I will also have to recommend Cleveland Clinic. And definitely talk to the insurance company. Who knows.... they have paid for the surgeon to attempt to do it twice... why not 3 times at a very, very reputable hospital?

Best of luck to you and let us know what you find out about the insurance questions. You may be able to help others with that answer.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, November 22, 2017 8:50 PM (GMT -7)
There are a total of 2,897,008 posts in 317,954 threads.
View Active Threads


Who's Online
This forum has 157539 registered members. Please welcome our newest member, BP_BATTLER.
316 Guest(s), 11 Registered Member(s) are currently online.  Details
JimBear, theHTreturns..., ppm guy, exbenzo, mpost, Faithmac, Big Tasty, ChickenArise, BP_BATTLER, PDXtransplant, Willibebetter


About Us | Advertise | Donate
Newsletter | Privacy Policy & Disclaimer
Follow HealingWell.com on Facebook Follow HealingWell.com on Twitter Follow HealingWell.com on Pinterest
©1996-2017 HealingWell.com LLC  All Rights Reserved.