Appt with surgeon

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Rider Fan
Veteran Member

Date Joined May 2008
Total Posts : 1447
   Posted 2/19/2009 4:17 PM (GMT -6)   
Hi. I've been posting on the crohns board for a while. I had an appointment with a surgeon today to discuss a possible sigmoid and ilium resection. During the discussion he told me that he feels the worst part of the colon to resect is the sigmoid because he has to attach it to the rectum. He said it's possible that if the cut doesn't heal or of the CD returns to the rectum again that it could mean a bag.

I was just wondering your guys' thoughts on this. Is this how a lot of you ended up with colostomies/ileostomies?

My other option is to try Humira first. I have to decide between Humira or surgery. Here is my recent history:

Sept 07 - Stopped 6MP after being on it for 6 years. Feeling great. Want to father child though.
April 08 - Wife not pregnant. Not feeling so great. GI says 6MP is ok to take when conceiving, start 6MP again. 100mg. Wish I hadn't quit the 6MP...
May 08 - Acute upper GI bleed. Hemoglobin drops to 9.4. Lose 10 pounds. Now 135 pounds. Blood transfusion, 25mg prednisone and 100mg 6MP.
September 08 - Not feeling too bad, but not great. Maybe I'm getting better....Wife gets pregnant.
Oct 08 - Have weaned off prednisone. Hemoglobin up to 12. Weight down to 130. Lots of stomach gurgling, something going on. Had some diarrhea, couple days laid up on couch. Not feeling so great after 6 months of 6MP, decide to switch to MTX, 25mg.
Nov 08 - Acute upper GI bleed. Hgb drops to 9.4, weight drops to 124. Blood transfusion #2. Stay with MTX, 25mg prednisone. Wish I hadn't quit the 6MP again....
Feb 09 - Weight up to 130 lbs, but Hgb back down, to 8.4 this time. Not an acute bleed (stool is brown), so must be slow bleed somewhere? Stuck on 7 to 10mg prednisone. Heading for blood transfusion #3. Still on MTX.

Thanks for your thoughts on my situation and for sharing your experiences with me!
32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: 25mg Methotrexate. 8mg prednisone. Udo's Choice Probiotics (30 billion).

Tried SCD, didn't work, now avoiding gluten and dairy.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 2/20/2009 2:24 PM (GMT -6)   
well, I'm on stoma #3...first one I had complications from surgery and it was a 3 month thing. Was a WONDERFUL 3 months, I might add!! Had reversal and my colon/rectum went back to their old ways...not to mention the many fistulas:( Lived like that for a while and when I couldn't take it anymore I went to my surgeon/GI and said I was ready...they BOTH wondered what took me so long...I guess I have a high tolerance to pain! I had that loop ileo for 8+ years...Just 1 year ago, I decided it was time for every thing to go and had a proctocolectomy. I had 3 nasty fistulas that didn't respond to any medication and they were getting worse...don't miss them one bit:)

I did try most of the meds. Remicade was WONDERFUL, but I wasn't able to stay on it...bad reaction to it after my third dose:( I did try the SCD diet myself, but I didn't have any success with it either.

I am VERY surprised how I feel now...having my ileo for 8+ years, I didn't "feel" sick, but my body still was...It wasn't until I had my proctocolectomy that I really FEEL HEALTHY again.

btw, my diagnosis was severe Crohn's.

Veteran Member

Date Joined Feb 2007
Total Posts : 788
   Posted 2/20/2009 11:19 PM (GMT -6)   
my dx was u/c. I have a temporary ileostomy. I have the option of having a jpouch b/c I still have a rectum, but I really don't mind my ostomy. I feel good. Better than I have in years.
However, Have you tried remicaid yet? Why not try it or humira b4 surgery? If it doesn't work, you can always have surgery.
I tried remicaid and it didn't work. But it has a better success rate in crohns patients. I opted to not try humira.

Congrats on your wife getting pregnant. Will this be your first child? Girl or boy?
Good luck with everything! You have some tough choices to make.
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."

Rider Fan
Veteran Member

Date Joined May 2008
Total Posts : 1447
   Posted 2/21/2009 1:32 PM (GMT -6)   
Thanks guys. I've decided to try the humira first. I was hesitant because of the lupus side effect and other things that can happen with it. But if I react badly to it I'll just stop it, right?

Yup, first and only child! The gender will be a surprise....

Thanks again.

32 y/o male. Dx'ed in 1999. No surgeries.

Current meds: 25mg Methotrexate. 8mg prednisone. Udo's Choice Probiotics (30 billion).

Tried SCD, didn't work, now avoiding gluten and dairy.

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