Post Edited (lentil) : 2/23/2009 11:55:52 PM (GMT-7)
Post Edited (lentil) : 2/21/2009 9:10:38 PM (GMT-7)
The blood is completely normal. The UC is in your rectal stump and can be treated with enemas until you have your next surgery.
Hi Lentil and tbraz,
Thank you for your thoughts and comments. We are back in the hospital. My daughter started passing large amounts of blood again. Two weeks ago when we were here they gave her IV steriods and we stayed on that dose when we got home and they added hydrocordisone enema's twice a day. She was diagnosed with severe UC through out the colon and rectum. Her GI doctor who we've always liked was telling her that they didn't think they could do anything else for her and they would probably have to send her to the sugeon to clean out the rectal lining and the chances of reconnect wasn't going to be an option. The surgeon told the GI doctor that he needed to try a few more things. She is not willing to give up yet. She believes in the reconnect. We were thankful to hear that. They did scope her yesterday to take some biopsies. They are checking her for a couple of different virus' as the surgeon said that these types of virus' will cause this inflammation. As I am hoping it could be a virus, they can treat that with meds. During the scoping he found a hemotoma and multiple sessile polyps. The other options is a different type of enema that they use for liver transplant patience or she can try the self injections (not sure of the name of the meds) which is like remicade and humira.
Our appointment in March was the 12 week follow up with the sugeon. At that appointment we would have been discussing the next surgery. But it seems that it will take longer for the next surgery. Which is okay with my daughter since she wants to be healthy and not have to worry about complications. She has been really well with the ileostomy. Now if only we can get the rectal inflammation under control.
BTW: her GI doctor is a Pediatric GI and the surgeon is an adult surgeon. So I believe the surgeon has seen this before. As our GI doctor said they don't really see this severity in their younger patience. So we are praying that they are going to be able to work it out.