Maggie welcome to this site, I'm so glad you found us!! You will find a wealth of support and information here.
I wanted to write to you because I had a similar situation, however, I had some warning of what could happen to me, unlike you.
I went in for a total colectomy on September 22 and was told it was a success when I came out of surgery. Everything was fine and I felt great for the first two days. Then I started feeling worse, having more pain, and basically going downhill. I finally had a CT scan four days after that at 11:30 at night. They found that I had a one inch tear six inches above where they hooked me back together and all the fluid had been leaking into me for four days. After a five hour surgery I woke up with a bag, 6 drains and an ng tube. I knew going in that the bag was a possibility, but it was still a shock. I spent 6 weeks in the hospital. I had a hard time adjusting emotionally to the bag and to my self image with the bag and I became very depressed. Luckily the bag was only temporary. I went in for the reversal on December 15 and although it was successful I had more complications and spent more time in the hospital. I've been out of the hospital for about
six weeks now and I no longer have the bag but I am still having a hard time with depression, self image (scars), etc.
Just like you I have a great support system and I can feel good for a couple of days and then I too crash. You may have read my thread titled "I can't take it anymore". I too feel like no one understands. I don't pretend to understand your situation completely because you had absolutely no idea what might happen to you. That sort of shock is unimagineable and for that I am sorry and totally feel for you. I wish there had been some way you had been forewarned, but to go in for a small surgery and come out like that would be distressing to anyone. You have a right to feel the way you do and you should probably expect to take some time to get over it or get used to it. Even though I knew what could happen I still had such a hard time.
What you are feeling is normal and it will get better. Keep checking in here and ask us questions or just tell us how you are feeling. We can at least understand somewhat what you are going through, everything except the total shock anyway. We will be here for you. The women on this site have pulled me out of the dumps more times than I can count and the great thing is you can log in day or night and someone is always here.
Maggie, just hang in there and know that you are cared about
35 years old
Chronic Lifetime Constipation
Diagnosed IBS - 1995
Rectal Prolapse - February 2007
Rectosigmoid Colectomy w/low anterior Anastomosis - March 13, 2007
Diagnosed with Colonic Inertia - June 08
Total Colectomy - September 22, 2008
Temporary Ileostomy due to small bowell perforation Septepmber 29, 2008
Ileostomy Reversal - December 15, 2008
Multiple Small Bowel Abscesses-December 22, 2008
Leak at original Anastamosis -December 25, 2008
JP Drain removed - January 23, 2009
The whole world is at your feet; so paint your toenails Red!