Wow! It worked....

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Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 2/22/2009 8:34 PM (GMT -7)   
I had posted earlier about the sure seal rings and not knowing how to use them.
I thought they were supposed to keep the whole stoma dry in the shower, not just the wafer.
So I decided to use them and rig up my own device with a little plastic wrap inside the ring.
I did it tonight and took a shower. It actually worked! I put enough wrap to have a little bulge to catch the poo. and it kept everything dry and my legs were clean. So cool. I didn't have to dry a bag afterwards. Then I peeled it off and tossed it away.
I'm so excited.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/22/2009 8:47 PM (GMT -7)   
And these are the Eakin Seals? I'm going to have to order some too...I don't like the wet spots I get from my bags staying soaked!

I'm going to steal your idea regarding the plastic wrap too...once I get my hands on some of those seals!!! 

Oh...I'm trying the SenSura (is that it?) and I like it a lot!  I'm just so nervous about my wafer leaking...my skin seems sore...so maybe I'm having a sensitivity to the paste or adhesive.

Anyway, I'm glad you found something that works!  You should patent a design with a little plastic baggy for that special shower ring.  You'd be rich!!!

I'm going to come up with designer bags...and once that's patented we can be rich together!!!

smurf  


: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown

Post Edited (RobinByrd) : 2/22/2009 8:50:23 PM (GMT-7)


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/22/2009 9:14 PM (GMT -7)   
no robyn, those aren't the eakin seals, those go under the wafer
What she is talkign about is this things that are made out of really thin plastic and you put them over teh wafer and itkeeps the wafter and bandaid part from getting wet.
they actually do work pretty good, we just got back from the beach and i had one on and went in the pool and it did keep it pretty dry, i had one spot that got a little wet, but not too bad.

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/22/2009 10:09 PM (GMT -7)   
Okay...I understand the purpose of it, I just didn't realize they were two different products.

Thanks
: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/22/2009 10:41 PM (GMT -7)   
sorry all the names can be very very confusing! and some stuff has more than one name too, it takes forever! for along time i called the paste, that toothpaste stuff, and the wafer, the bandaid thing, lol.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/23/2009 9:56 AM (GMT -7)   
Chassity...have you looked at Stoma Caps? They are basically the same thing you created...here's a link to just one kind that's out there:

https://www.edgepark.com/shopCatalog/ShowItemDetails.cfm?PSKU=622802&PageRef=ShopCatalog&nm=ASSURA+OPQ+STOMA+CAP+W/FLTR,+1/2+inch++-+1+3/4+inch+,+30&cat1=&cat2=&cat3=&catid=&subcatid=

you could use the sure seal on the wafer and just use one of these for the shower and put on your regular pouch when done.

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/23/2009 12:24 PM (GMT -7)   
Stoma caps?! Darn!!! Chassity, I was really hoping you could have intented something wonderful!

I'm still going to work on designer bags. : ) If you have any preferences color-wise or design let me know. : ) I think sticking with lighter colors would be good, but a design would be nice...something with pattern or something really just to make my accessory more of an accessory.

: )

I'm eating the crap out of sugar b/c I can and I just made myself sick off jelly beans.
: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


emma12s
Regular Member


Date Joined Nov 2008
Total Posts : 25
   Posted 2/23/2009 12:26 PM (GMT -7)   
Something else someone on these forums had suggested, use the plastic wrap called Press and Seal over top of the wafer and bag--just fold up the bag and tucking it and put the press and seal right to my skin--a little pink tape on the top for more assurance, and it works pretty well, sometimes a few small wet spots, most of the time, I'm pretty dry out of the shower---no wet bag or wafer.  Take it off and you're good to go.  I've looked for the stoma caps, but I can't seem to find one that would work with my wafers--or maybe I don't know what I'm looking for?  I haven't tried the sure seal rings, I'll order some next time.

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 2/23/2009 8:33 PM (GMT -7)   
ROBIN-Check out what I wrote on my 'pred and other things' post. I totally wrote what you wrote on your first post here! And I read this after I wrote that. Crazy!!!!!!! We said the same thing. I want a bag that is skin colored with fake tatoos. And I can change my bag according to my mood.

Ohio- HEY they stole my idea. Bummer! But it will be easier to just buy some o' those. thanx.

Emma-That's a good idea too. But instead of tape, I'll use sure seal rings.

Summer- HI! I didn't want to leave you out...... :)

Thanks everyone
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."

Post Edited (Chasblah) : 2/23/2009 8:39:01 PM (GMT-7)


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/23/2009 8:53 PM (GMT -7)   
thanks that was super sweet of you, lol.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/24/2009 6:10 PM (GMT -7)   
hey Robin! I think the idea of designer "pouches" is GREAT!!! Sorry, but "bag" is my mental block...I've always thought "pouch" just sounds better....

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/25/2009 8:42 AM (GMT -7)   
I like the idea of 'pouches' too...I guess I just used the term 'bag' because I also communicate with j-pouchers and they use 'pouch' in regards to their j-pouch.  : )  So, I think I'll convert to the 'pouch' talk as well regarding my ostomy.  However, I actually call it my 'accessory'.  : )
I'm going to focus on some cute designs with tans, golds, ivorys, and possibly some browns.  I'll do both male and female designs.  My brother can do tattoo designs, so I may hit him and his friend up for some rad images.  They would be so easy to cut and stencil onto the pouches and what I want to do is add some shimmer.  : )  As much as I am against super bling, I do love a nice sheen and shimmer to my appearance.  So, why not have a private shimmer affect?!  : ) 
Anyway...I am super serious about the designer pouch idea.  I'm going to chat with my dad's cousin who's an attorney about the patent legal side of this before I start sending my ideas into the companies.  I am so excited!!!  : )  I guess a darker color wouldn't be bad to use toward the bottom of the bags.  We could even have black and dark brown!!!  Hmmm....I need to get out my sketch pad and start designing!  Who knew my minor is art would be used in ostomy design!  If you told me then what I would be doing now I NEVER WOULD BELIEVE YOU!!!  Hhahhhahahahaahhhaaa!!!!  : )
 
smurf  
: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


praying4healing
Veteran Member


Date Joined Dec 2007
Total Posts : 739
   Posted 2/25/2009 4:30 PM (GMT -7)   
please do!im excited! especially about the darker colors!
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Seatons placed
Worst year ever!

"For God has not given us the spirit of fear....."
Where does mine come from?!
 Temp Ileostomy performed 1/29/08
Still Adusting
 Healingwell.com has been my Godsend...Thank you


RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 2/25/2009 6:08 PM (GMT -7)   
Yeah, I'm surprised they don't already have designs for adults. Oh well...leave it to me...I'll work something out! : )

I'll post something later once I get some things sketched up and I'll ask for prefences from you guys so I can make sure you're needs are met. : )

Whoo-hoo for designer pouches!!!!

And if anything else I'll just have people send me their bags and I'll decorate them myself for a decent price. : ) I love doing the artwork by hand, and if I have stencils made up them it should take nothing at all. Also, if we do it that way I can personalize the pouches. With initials...special pictures...colors, etc. Maybe I should do that instead...and leave the companies out of it. What do you think?
: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown

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