I too am very sorry that you're suffering and facing yet another surgery.
I actually had UC pancolitis, which was throughout my entire colon and toward the end of my stint I knew had affected my rectum...OUCH!!! Anyway, when I had no other option but surgery I opted for a permanent ileostomy on my account because I wanted to be done with it all. I'm telling you this because though the idea of an ostomy is spooky and scary, I felt that it was my only option for a long and healthy life without many interruptions. Now that I have my ileostomy I do not regret my decision one bit. I wish that there were a way for us to have a glimpse of what it would be like post surgery so we can have our nerves and anxieties calmed. However, the best we can do is tell you that every thing will be okay, and that life with an ostomy is not bad. For most of us we have been given back our lives, our happiness, and our quality of life has just been renewed! I'm still in recovery from my surgery and am being forced to recover appropriately, because I will tell you that being UC free just gives me such a good feeling I want to be up doing everything I couldn't while sick. BUT...my body needs to heal and I am forced to lay around and take it easy.
There are really no words to explain how amazing my life has become now that I am disease free. I wish you the best of luck and please continue asking questions...we are all here to help you and support you.
: ) Robin
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
"Your mind is like a parachute, it only works when it is open." -Unknown