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Regular Member

Date Joined Feb 2008
Total Posts : 493
   Posted 2/27/2009 5:25 PM (GMT -6)   
Well, I am here at the hospital. Surgery was a success. i am surrounded by a great team. Scared to leave the shelter of the hospital and the skill of the staff and wondering what life will be off meds. It's so overwhelming in a way I've never experienced. Robin and Wolfie--how is it going?
24+ years with Crohn's/colitis; fistulizing crohn's; pentasa; started humira 7/1/08;codeine for D; sometimes supplements: MSM, e, selenium, C, B complex, multi, iron; recent meds to get through til surgery include propranolol and xanax

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 2/27/2009 6:46 PM (GMT -6)   
sammies tongue turn wink smilewinkgrin :-) :-) I am so glad things went well...don't worry about what life will be on the outside.  Take is slow, you'll be okay!!  Don't forget that we are here for you and will take each day with you while you need it...when will you be discharged?
Oh, about the meds, I STILL (it's been a year) think I've forgotten to take them at some point during my day...I hope I grown out of that soon!!

Veteran Member

Date Joined Feb 2007
Total Posts : 788
   Posted 2/27/2009 9:51 PM (GMT -6)   
Yea Sammies!
Welcome back.
Glad things went well for you.
You'll get the hang of it. Don't worry.
When do you get to leave?
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 1/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
pred. taper, coumadin, carafate, prenatal vit., and pain meds
(ileostomy temporary....not so sure?)

"Things turn out the best for those who make the best of the way things turn out."

Betty Poop
New Member

Date Joined Feb 2009
Total Posts : 12
   Posted 2/27/2009 11:00 PM (GMT -6)   
I remember the same feeling...fear to leave the hospital. I cried as my family drove me away from the hospital. I was in for 9 days and felt very insecure leaving. It felt so nice to come home though. Once you get comfy in your own bed and seeing all of your things around you...I hope you will feel happy.
Cancer Diagnosis  Jan 2001
Hysterectomy turned into colostomy on left side.
Feb 2002 
Takedown surgery turned into reconnecting to rectal stump but ended up with a temporary ostomy on right side.
Radiation therapy has caused too much scarring of the rectal area to allow for normal BM's. So temporary ostomy has become perm.

Regular Member

Date Joined May 2008
Total Posts : 159
   Posted 2/27/2009 11:40 PM (GMT -6)   
what kind of surgery did you have done

Regular Member

Date Joined Feb 2008
Total Posts : 493
   Posted 2/28/2009 3:08 PM (GMT -6)   
total proctolectomy and ileostomy
24+ years with Crohn's/colitis; fistulizing crohn's; pentasa; started humira 7/1/08;codeine for D; sometimes supplements: MSM, e, selenium, C, B complex, multi, iron; recent meds to get through til surgery include propranolol and xanax

Regular Member

Date Joined Feb 2009
Total Posts : 28
   Posted 2/28/2009 6:45 PM (GMT -6)   
sammies, safe hugs..... so happy to hear the procedure went well. wishing you well on your way to healing and healthier living.

take care and get lots of rest,

1/12/04 surgery to repair prolapsed bladder, partial hysterectomy
12/11/08 surgery to repair prolapsed intestines, bowel, rectum (enterocele, rectocele & intussusception)
12/30/08 temp ileostomy and rectal stent due to rectal/vaginal fistula
PTSD, depression and anxiety disorder
~~Our greatest glory consists not in never falling, but in rising each time we fall~~

Veteran Member

Date Joined Dec 2008
Total Posts : 511
   Posted 2/28/2009 7:51 PM (GMT -6)   
am so glad your surgery is done and over with!!!  I felt that prior to the surgery I was a mess, but once it was over and done with the feeling of no UC was awazing!!! 
I really am so happy with my decision.  It did take a minute to adjust to the ostomy, but now that it's been three weeks I am completely comfortable with it and I really like the Coloplast Sensura I'm using.  So, it's going GREAT!!!
I do suggest you call around to all the companies and request samples.  I was sent home with a Hollister and once I received the pkg my nurse ordered I cont'd to use them for awhile with the velcro seal.  However, I do really like the Sensura I have now...and now am contemplating the Sensura Flex b/c it's a bag and adheres to the flange by sounds crazy to me. 
Anyway, there are so many things to think about and absorb once you're home.  I really did over do it, lifting and activity-wise.  So, I've really taken it easy the past few days, well, week really.  It's made a big difference in my recovery.
My stoma has shrunken is size more this past week than ever before!  I rinse my bag with water each time I empty it and I started feeling the cold water so I knew I needed to change my flange/wafer b/c my skin was exposed!!! 
I'm just super happy and looking forward to getting some energy back.  It seems that my body is working really hard to get better and I've just been really sleepy the past few days.  I may need to talk with my doctor about that b/c I had been extremely energized the first week or two.  So, I'm curious now.  I really liked being was a new feeling, as my UC always left me completely exhausted. 
Anyway, I so hope you're doing well, and that you're recovering okay.  I know you're having a pain issue, and I posted a reply to that one as well. 
GOOD LUCK!!!  You can email me if you have questions or want to talk privately.
: )  Robin
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
"Your mind is like a parachute, it only works when it is open."  -Unknown

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