I had my laparscopic proctocolectomy with a permanent ileostomy three weeks ago this past Friday...and besides the prolonged pain from over doing it (my fault entirely!) I feel AWESOME! Being UC free is the absolute BEST EVER!!!
My suggestion is definitely have some trashy tabloid magazines b/c you won't remember much during the first day or two (possibly three) and it's nice to have them to reread once home in bed. : ) My best friend gave me a bag of blow pops b/c I was told that having hard candy and gum would help move things along...so I just figured that having both together was a good plan...besides, I love blow pops, YUM! Also maybe bring a blanket and definitely your own pillow. My mother-in-law made me a blanket just before my surgery and it was so nice to have it with me. Please make sure your surgeon and you have discussed the pain management plans...I just assumed I would be given a pain pump b/c everyone said they had one and my uncle is a retired abdominal surgeon and he said it was a given...well, I didn't have one. I hate my surgeon who is now called Dr. Ass----. : ) Shmuck. Oh, I also think you would greatly benefit from purchasing a bottle of Hollister's deotorizer prior to your stay at the hospital. It works great. I really wish I had gotten some once I got a whif of initial output...like summerstorm said, it's gross. You can pick it up at your local medical supply store...specifically it's called Hollister M9 odor eliminating drops...it says 4-12 drops are substantial, but I just squirt a bit in and go about my way. I also use a little squirt water bottle and fill my accessory (that's what I call the pouch) a bit with water each time I empty. Some people clean their pouches daily, but mine stays pretty clean b/c I rinse each time. Uhm...let me think...oh...please do not over do it when you get home. : ) I have a toddler and I completely did too much my first two weeks, so the third week I tried hard not to do much I began to heal a bit more...so I started being more active and OUCH!!! I'm an idiot. I appreciated my sleep mask, my slippers (with backing), extremely loose clothing, and cotton panties. You'll probably want to either use old ones or get some that you wouldn't mind throwing away b/c your bootie may ooze a little. Which is normal and gross too. : ) Also make sure you drink plenty of fluids within the first week or two b/c it helps your output move through and felt it was just so much more comfortable. The output will thicken fairly quickly, and the tummy toots last about two weeks (on average) and then they subside greatly! I promise!!! : ) I would just joke with my family and friends about my tummy tooting b/c it sounds more like a little kid making noises with their mouth or a tummy gurgling.
I'm sorry I wrote a book, but this is just so fresh in my mind! I'm still off from work and recooperating, but slowly getting back into a routine. I went to the store today for the first time by myself since my surgery. Well, since before my surgery b/c my UC was super angry and started to make life difficult. So, it was awesome being alone, but man was I in pain by the time I left! I gimped around when no one could see me, and I was very nervous about my accessory pooch showing. I'm still too sore to wear panties over it, which I recently learned that the high cut tall panties are comfy and decently attractive, so I bought some today. I also appreciate Gas-X...I like it better than Bean-O. : )
I am so happy that you are going to be UC free!!! Yea!!! It is such an amazing feeling! I was in tears when I no longer felt the pain...UC pain that is. I still take my moments to think about my tummy and how amazing it is to not feel anything there!!!
Also, FYI...I'm in the process of designing designer pouch covers! They are going to be gorgeous and custom designed for everyone's preference. I am still in the drawing board stage, and I will try them out before submitting the "open for business post" : ) but do not fear, I will have some very awesome pieces to help personalize your 'accessory'!
: ) Robin
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
"Your mind is like a parachute, it only works when it is open." -Unknown