Prednisone Withdrawls?!

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RobinByrd
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Date Joined Dec 2008
Total Posts : 511
   Posted 3/2/2009 10:52 PM (GMT -7)   
So, at this moment I am jittery and unable to sleep.  I can barely contain myself...it's horrible.
 
Am I feeling this way from Prednisone withdrawls?  I thought I had been tapering my pain meds decently, and am switching to Tylenol for pain management.  I took a Rx pain med this evening in hopes that it will help me go to sleep...but so far it's not working.
 
I'm also waking up with headaches.  Every morning.  I slugishly make it to the kitchen and take my Excedrin then go back to bed...normally within an hour my headache is gone. 
 
My jittery issues only occur in the evenings.  It's absolutely crazy!  I just wan to jump out of my skin!
 
Do you guys know what I'm talking about or am I looney?
 
Thanks!!!
 
smurf  
: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


pepperann27
Regular Member


Date Joined Dec 2008
Total Posts : 147
   Posted 3/2/2009 11:01 PM (GMT -7)   
it sounds like withdrawl, its awful huh? But I haven't ever been on prednisone, my withdrawl was from when I had a gastric emptying study and I had to go 2 days without any of my medicine, it was horrible.

I hope you get feeling better very soon!!
thanks, Dusti

Diagnosed with colonic inertia at 13 years old, had my colon removed.
Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.
Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have. I am 27 now.
If you want to know more, just ask me!
"Don't worry about failure, worry about the chances you miss when you don't even try"
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 3/3/2009 7:07 AM (GMT -7)   

yep, it sounds like pred withdrawal... that drug is evil devil

the good news is... it will soon be out of your system and you'll hopefully never have to take it again!


Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/3/2009 7:11 AM (GMT -7)   
Robin,
When was the last dose of Prednisone and how much? Just curious.... I had a horrible time coming off of prednisone... I ended up shaving a little off of a 5 mg pill and tapering it that way for a few weeks. I actually had flu-like symptoms everytime I tried to stop that stupid 5 mg pill. "Shaving" worked for me and I haven't taken any oral steroids since 1984! Best of luck to you.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Pibbin
Regular Member


Date Joined Apr 2008
Total Posts : 163
   Posted 3/3/2009 9:28 AM (GMT -7)   
So sorry you are struggling. Getting off prednisone is hard, but stick with it, it is SO worth it.

I didn't have jitteriness, but did have those morning headaches. For me, it took 6-8 weeks before I was free of them, but since that point, no more!

Hang in there, I know its tough.
Dx Mild Proctitis 7/06 at age 33, Dx Severe Pan Colitis 5/07, Dx Crohn's Colitis 10/07
Failed Asacol, Lialda, 6-MP, Canasa, Rowasa, Proctofoam, Entocort, Remicade, Humira
10/10/08 colon removed, temporary ileostomy
11/10/08 FINALLY off prednisone after 18 months
2nd of 3 surgeries planned for '09 to form j-pouch


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/3/2009 9:36 AM (GMT -7)   
Yeah sounds like it, or if you stopped another med it could be that too partially, some of them take along time to get out of your system

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 3/3/2009 11:57 AM (GMT -7)   
I took my last dose of the Devil's Advocate drug two Sunday's ago.  My jitteryness started this past Saturday, as did my headaches.  It' just absolutely uncomfortable!!!
 
And I will NEVER take prednisone again.  Nope.  If poison ivy becomes an issue I will use the pink cream and take oatmeal baths before going back to those evil little white pills.  : )  It's a good thing I'm not really allergic to the ivy!  I've only had it a handfull of times in my entire life, and it's been extremely minimal.  Now, my brother is a different story...poor guy...as a child he simply had to breathe around it and he was taken to the doctor for shots.  He still gets that way at times.
 
Anyway, I've gotten off ALL meds except for my Paxil, and I'm just taking Prilosec once a day now...I love my mustard and spicy foods, so now that I'm eating them again I really do not want the reflux to start back up.  : )  I'm going back on my birth control at the next opportunity b/c I wanted that out of my system too just to give my hormones a chance to relax and breathe without all that medication!
 
Thanks guys so much for your support.  If it weren't so cold last night I would have taken a midnight stroll around our neighborhood.  However, it's freezing and icy, so leave it to me to fall on black ice half a mile from home and have to call someone to come get me.  That's MY luck.  : )  Summerstorm has the funny stories about pudding and washcloths...I'm the one with the bumps and bruises from dorky mishaps. 
 
smurf  
: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/3/2009 3:12 PM (GMT -7)   
LOL Robin, i got plenty of stories about bumps and bruises, i jsut dont tell those! I did get my head smacked into a wall last night being pulled around by my feet on the floor, lol.

Anyway, over the summer, my son and i got in an anthill, and they wanted me to take prednisone, and i said, actually very rudely, though i didnt mean it to coem out that way, that there was NO WAY i was takign that stuff.
they looked at me rather strangley, and i said, i will just itch thank you very much.

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 3/3/2009 10:26 PM (GMT -7)   
My husband and I went to dinner with some friends this evening (it is our 2nd wedding anniversary!) and our friends are going through a difficult time, so we invited them along.  : )
 
Anyway, I was talking my withdrawls and how irritating it is.  I hadn't realized that the terms I was using really made me look like a drug user!  I talked about the "roids" and the "pain pills" and then my shakes, jitteryness, headaches, etc.  The couple next to our table kept glancing my way, and then then guy at near by table actually turned all the way around in his chair and just stared.  I don't look anything at all like a druggy!  It's a good thing I hadn't mentioned my infusions and the IV drug!!!  Once I realized these people were sizing me up I should have talked more about my hospitalizations and tollerance to vicadin!  I never think of smart ass things to say right away...it's always an hour later that I have my come back.  : ) 
 
smurf  
: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 629
   Posted 3/19/2009 6:30 PM (GMT -7)   
Just be glad you're not going through dilaudid withdrawl...I was on that stuff for several months, then the doc started tapering me, wow that was a crazy time. But I have to admit cigarettes are far worse..

Matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis

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