looking for a specialist to do my reversal....what is there exact title.....

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kimlin08
Regular Member


Date Joined Feb 2009
Total Posts : 46
   Posted 3/4/2009 9:18 PM (GMT -7)   
Sorry to be so uninformed about all of this....so new to me.....Because of my scar tissue I want the best.....the dr who did my colostomy was very good and he saved my life, however, he is being realistic with me about not being over obtomistic about the sucess of the august surgery, due to scar tissue.....I want someone who does this everyday or has lots of experience on difficult surgeries...HELP, how many of you h ave had unsucessful reversals?   Thanks so much, Maggie
Maggie in tennessee....coping


tbraz
Regular Member


Date Joined Jul 2007
Total Posts : 280
   Posted 3/4/2009 9:40 PM (GMT -7)   
Hi Maggie,

What you are looking for is a colorectal surgeon

The best of the best in this field is at the Cleveland Clinic

You can also go to CCFA and do a search for a surgeon there

Good luck with your search
Theresa

Originally diagnosed with CD in 1991
Now saying "Undetermined Colitis"
3 step Jpoucher as of 4-15-08


Pin Cushion
Regular Member


Date Joined Feb 2003
Total Posts : 442
   Posted 3/5/2009 12:38 AM (GMT -7)   
There is also a great one in Eugene Oregon. Dr Dehaas has operated on me four times and I will not let anyone else touch me!
What I did was when the time had come that I had to have my first diconect and removal I started asking the nurses in the hospital, not to recomend one as they are not allowed to, I asked "if you had to have this kind of surgery done who whould you go to?"
I did the same thing when I needed oral surgery and found Dr Roberts in North Bend, Or. This dr is fantastic. 19 teeth most ahd to be cut out and did it without gas on novacane!
Moderator for the Diabetes forum
 
Sigmoid Colostomy / Crohns / Type 1 Diabetic / Ostioarthritus /RLS/ Fibromyalgia / Asthma / High Blood Pressure / High Colesterol / Migraines. Ain't life a joy?



* I think it may be time for a colorful metaphor*


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 3/5/2009 7:07 AM (GMT -7)   
I agree with the Cleveland Clinic and since you are in Tennessee it's not too bad of a commute. CC gets top scores for colorectal surgery and GI specialists.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


emma12s
Regular Member


Date Joined Nov 2008
Total Posts : 25
   Posted 3/5/2009 8:14 AM (GMT -7)   
I'm scheduled for reversal surgery in April at Cleveland Clinic, so, I obviously agree with the above posters--my initial surgery was done as an emergency by a local general surgeon (ruptured diverticula) in a small hospital, they told me at time I didn't have time to be transferred to Cleveland, he did not do a colostomy, instead chose to resect my colon.  After 4 days, this failed (in part, I believe due to the way he was treating me---long story), but he was insisting at the time to my husband and mother that I should have a total colectomy because my colon was so full of diverticula that I had no other choice.  Thankfully, we all insisted that I should be transferred by ambulance to Cleveland (an hour and a half) for the second surgery where I was given a temporary colostomy (most of my colon is still intact-and, my new surgeon doesn't believe I will have any further issues with diverticulitis!). 
 
My surgeon is insisting that I wait 6 full months for reversal, but doesn't foresee any problems, although he has mentioned scarring and strictures--and has cautioned me of a very slight chance that I would need a loop ileostomy for another 3 months if there appears to be any chance of leaking at the resection (I'm praying that won't be the case).  The difference between my colorectal surgeon and the general surgeon is night and day, both in the way they did the surgeries, and the after care, which is almost as important.  Good luck

maine
Regular Member


Date Joined Jan 2008
Total Posts : 38
   Posted 3/5/2009 8:59 AM (GMT -7)   

  HI ALL

 

  I HAVE HAD TWO FAILED ATTEMPTS AT RECONNECTION AFTER A SIGMOID RESECTION AND TEMP COLOSTOMY.  THESE WERE DONE WITH A GENERAL SURGEON. I HAD PERFORATED BOWEL DUE TO DIVERTICULITIS IN OCT 2007.  I'M A LITTLE UPSET THAT HE TRIED A SECOND TIME AND DID NOT REFER ME TO A SPECIALIST..HE LED ME TO BELIEVE THAT THIS SECOND ATTEMPT WOULD BE A GO.  NOW I FACE A 5TH SURGERY, HE SAID HE WOULD REFER ME TO A SPECIALIST IN BOSTON THIS FALL FOR A CONSULTATION.  MY COLON IS JUST FINE NOW, THE PROBLEM IS GETTING THE COLON TO THE RECTUM, AS THERE ARE ALOT OF ADHESIONS FROM THE PRIMARY INFECTION IN OCT 07. HOPE I CAN FIND THE RIGHT DOC IN BOSTON...WILL THIS EVER BE OVER???? IM JUST SO FRUSTRATED AND SO IS MY HUSBAND

 

DIANE FROM MAINE

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