Hello all of you. I am so lucky I found this site. Not getting the info I need from my surgeon. It sounds like most of you knew exactly how you were reattached and where. I have had severe Diverticulitis since March. In and out of the ER, put on antibiodics, which never helped. Had a colonoscopy, 10 CT scans and no one knew how bad my sigmoid colon was. Untill the day the surgeon went in to see how bad things were. He took out 18 inches of colon out Oct, 22. He tried 3 times to reattach, but air leaks kept on happening. Needless to say I woke up with a Ileostomy. I was to have a take down 6-10 weeks later, only to have my Stoma retract into my abdomin 3 weeks later. In one weekend I went through 17 colostomy bags because they would not stick or fit with out leaking within an hour. My skin was raw and torn. They did an emergency take down. Things went better, but within one day I sprung a leak again and went in for my 3rd surgery. This one took it's toll. I spent 4 days in ICU. I lost 3 of those days which I cannot remember a thing! This time my heart reacted to the stress of the surgery. My legs swelled and they thought I might have a clot either in the legs or a pulmonary embolism. On the 10th day in the hospital I pleaded to go home for Thanksgiving. Only to have stool leaking from my incision 2 days later. Back into the hospital. Apparently I had a fistula leaking with a Staf infection. They put me on heavy duty antibiodics with a pic line. Tried a wound vac on my incision. I oppted to go home with IV drugs to do at home for another month.
The incision has finally scabbed over and I'm am off the IV's. I tried to eat more solid foods on Christmas, like tiny bites of turkey and stuffing, mash potatoes, cranberry sauce. Well that was a huge mistake. I had severe pain in my guts, sounded like a thunderstorm. Diarreha, which is mostly all I have anymore, multiple times a day. But I started to have blood in my stool. Scared the hell out of me since my doc was on vacation. Apparently my intestines cannot handle any thing more than mush to eat. Talk to my doc yesterday, he said only soft foods, like pasta and mash potatoes, soup, and a boost drink 3 times a day. Nothing solid at all. No meats or veggies or fruit. I still have shooting pains and my incision hurts. I cannot see me ever having real food again. He thinks where he reattached is still not healed and it bleeds if anything big comes down the pike. I am so worried about another leak or it coming apart with all I have been through. He keeps on saying that I will have a hernia, I WILL NOT GO THROUGH ANOTHER SURGERY! Not to mention my Cobra insurance which my mom has been paying for at 600 a month runs out. It has been a long and tramatic time for me since I am a single mom with a teenager who has Cystic Fibrosis. I haven't work since this all started, I got fired from my job due to the surgery. There is no way I could work. I tire easily and can't do many physical things. I am still on a nothing diet. I lost 20 pounds and continue a couple pounds a week. I can afford to loose the wieght, but I have no strength. I need to get back to my life before I loose my home!
I am so frustrated, but it's good to see that you all have had trying times and I'm not alone. I just wonder when it will all end and I will be normal again. Not sure if I will ever be able to eat the foods I love. I guess I will need to come to grips that may never happen.
I'm thinking I need to find nutritionists that specializes in intestinal issues. Is there such a thing? My doc is a general surgeon, I don't thnk hes fluent in these matters.
Thanks again to all of your posts!