This is normal for any type of surgery due to chronic illness. It's hard for you to imagine a life without health problems-yes it happened to me too. I think when you awake from surgery and feel that sensation, that we all do, that UC is gone will help you to get passed those worries. It's been 8 years since my surgery and I have not needed a doctor for anything other than a case of rhinitis a few years ago. I have never seen my GI and only have an annual physical. I take no prescription medications and my GP is envious of my excellent CBCs. Who would have thought that I would have gone from 22 pills per day to perfect health? It will happen.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free