I am leaking again

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tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 3/12/2009 2:10 PM (GMT -7)   
This appears to be leaking at spout when I empty bag. I now have two clips but is still leaking

Any suggestions?

tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 3/12/2009 2:15 PM (GMT -7)   
I think it is leaking at bottom of seal. Why is this happening? I can't live with poop all over me all the time.

I guess I should change bag. I'm not sure how to do it but I think that is my only hope.

I cna't live like this

tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 3/12/2009 2:23 PM (GMT -7)   
could it be that i did not empty it when it should have been ie it was too full?

tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 3/12/2009 2:30 PM (GMT -7)   
is there an 800 I could talk with ostomy nurse?

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 3/12/2009 3:56 PM (GMT -7)   
Oh my goodness, I'm so sorry to hear this.  sad I would put on a new pouch, because it sounds like that one is faulty and has a hole in it.
Cecilia
Dx'd Crohn's in '99 at 28. Proctocolectomy and ileostomy in '06.
Disease-free, medicine-free, and very thankful to be healthy again.


summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 3/12/2009 4:21 PM (GMT -7)   
you can call your ET at the hospital.
if you let it get too full it can def cause a leak.  I'm not sure what you mean by leakign at bottom of spout.
But if its coming out when you have it clipped up then the bag is either bad or the clip is bad.

Post Edited (summerstorm) : 3/12/2009 5:27:32 PM (GMT-6)


pepperann27
Regular Member


Date Joined Dec 2008
Total Posts : 147
   Posted 3/12/2009 4:49 PM (GMT -7)   
when you change the wafer, I suggest adhesive spray, it works good for me. I get it at the same place I order my ostomy supplies.
thanks, Dusti

Diagnosed with colonic inertia at 13 years old, had my colon removed.
Diagnosed with rectal inertia at 16 years old, had my rectum removed and had a jpouch made.
Diagnosed with small bowel inertia at 18 years old, and got an ileostomy wich I still have. I am 27 now.
If you want to know more, just ask me!
"Don't worry about failure, worry about the chances you miss when you don't even try"
 


Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 3/12/2009 5:28 PM (GMT -7)   
Did you get things squared away?

General rule...when starting off with an ostomy...is 1/3 full you should empty. It takes pressure off of your tummy and you get the hang of emptying an easier pouch. Those 3/4 full ones can be TRICKY---

tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 3/13/2009 2:04 PM (GMT -7)   
Changed bag last night and has held all day; but I have emptied it frequently.

I use one piece and convex because my stoma is small and flush with skin.

Finally feel like I'm getting support in community. Found out that local hosp has ostomy nurse and I have appt on Monday

I get confused with all the terms. I think it is the stress of leaking.

I just keep reading what every one says in hopes that something will sink in the ole brain.

I have periods of depression but I come out of them.

I am still numb from surgery Mar 2. Numb across lower abdomen. Feels like it has novacaine.

Back hurts and hard to rest. Don't want to take the pain med because they won't let me drive if I'm on them

My insurance company has assigned me two nurse case managers.

Get tired easily

But I really am doing fine except for leakage. I have enough bags now to last weekend.

Thanks for all the input. I read and study

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/13/2009 11:13 PM (GMT -7)   
take your pain meds, i know you want to be able to drive, but you will heal faster if you are not in pain.

The numbness across your stomach is normal, its annoying, i had that feeling on and off with a pulling feeling for a couple of months.

Emptying often is a good idea for you right now. htat will help with your leaks alot i think.

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 3/14/2009 10:23 AM (GMT -7)   
I had this surgery laparsopically...however, my c-section was pretty hard on me, and that was 14 1/2 months ago...I still have numbness around the incesion area and places where my tummy was stretched beyond belief. : )

I'm glad you're starting to get your situation under control!
: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 3/14/2009 3:11 PM (GMT -7)   
RobinByrd
That must be what happened to me (ie tummy stretched beyond belief). Surgeon said I was unusual in my belly and it took him a while to make the j pouch. I had laparsopic surgery too.

I've developed a low grade fever and feel feverish. Reminds me of the way I felt when I had Ulcerative Colitis.

NEsailor
Regular Member


Date Joined Mar 2009
Total Posts : 31
   Posted 3/14/2009 3:14 PM (GMT -7)   
Hang in there, the fever on top of it all is no fun. Don't be a hero, if it continues at all, get to the doc. You don't need anything on top of what you've been through already. shakehead

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/15/2009 5:13 AM (GMT -7)   
How's the fever today? Don't mess around, if it gets to 101...call your doc and get to the hospital!

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/15/2009 5:38 AM (GMT -7)   
Please pay attention to the fever - even if it is a low grade fever.  Let your doctor know.

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 3/15/2009 7:42 AM (GMT -7)   
I see the ostomy nurse on Monday16th - tomorrow
Last night I felt so bad with low grade fever and body aches (just like I did when I had UC)
I took Tyenol with pain medicine at nine pm, and at three am, I had no fever. I took two more Tylenol without pain med and at nine am, I had no fever.

Tomorrow I will tell nurse of fever and aches, and my concern. If I get another fever I will call surgeon's office.

Knock on wood - the bag we put on Sat morning at six is still holding. That's the longest I have ever been without a leak except in hosp. I am so grateful. Nice to be dry

I just tire easlily and my back continues to hurt.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/15/2009 9:31 AM (GMT -7)   
your back will hurt for a while, that bothered me more than anything!
If you have one keep a heating pad on your back, just make sure it does not get on any area htat has been operated on. LIke i dont know if you had your bottom sewn shut, ifyou did make sure the heatingpad doesnt get on there!
And YAY for a whole day without a leak!

tkctwbd
Regular Member


Date Joined Dec 2007
Total Posts : 82
   Posted 3/15/2009 9:35 AM (GMT -7)   
Yes, I am sooo proud that I've been over 24 hrs without a leak. I'm beginning to relax.

I have a good heating pad and will use it. Thanks. I'm glad to hear that hurting back may not be that serious.

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 3/15/2009 12:26 PM (GMT -7)   
My back hurt horribly after surgery too.  And, I think a lot of times, we tend to baby the belly where the surgery was done, and that doesn't help the back either!

Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 

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