Hi there! I'm glad you've posted and are asking questions...the information I learned here has been invaluable!
I'm so sorry you had a flu on top of the recovery. I had a severe migraine that landed me in the ER a few days after I was home too. Not fun.
In regards to what's ahead...just recovery. Take it easy. I felt the most difference after the third and fourth week post-sugery. It's been five weeks today since my proctocolectomy and I feel wonderful! I have very little pain...just some physical annoyance when I've been up doing too much (like running errands and being on the go). I do find that I am still easily exhausted, so I'm going to have to start drinking coffee I think.
Whatever you have questions or concerns about, just post away!!!
Oh, but something I'm going to start doing when I go back to work or just spend time away from home, I'm going to down the fluids b/c I prefer my output to be extra liquidy so I don't have to rinse my pouch each time (which I do at home with a water bottle). I'm also going to start using a lubricating deotorizer, so hopefully that will help keep my pouch clean while I'm away from home. : )
: ) Robin
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
"Your mind is like a parachute, it only works when it is open." -Unknown