Isn't it the most amazing feeling to have the feeling of being disease free?! I love to just sit and feeling the nothingness!!! IT'S AWESOME!!!
I too am sorry you've had such a bumpy road...we all have had a nasty little experience prior to the surgery...it's not like we just woke up one morning and though, 'you know...I think I'll have my colon removed!' I was not hospitalized prior to surgery, so I can only imagine how ill you must have gotten. I was miserable, do not get me wrong, and I was in the bathroom 30 plus times a day off and on for 7 months...not fun! However, now that I have my ileo I go to the bathroom when I feel the urge to pee...such a wonderful feeling!
You will get used to the ileo. My first week was a little dreamish...it was a lot to take in. However, after suffering for as long as I did, I really did welcome the ileo and my new lifesyle. That's just my take on it. I was very grateful to have the UC pain gone and my surgery pain was excruciating, but nothing compared to the pain I had prior to the surgery. I am just so thankful every moment of every day that I have my life back. It's been five and a half weeks since my surgery and I love my life! When I public I do ask my husband or family periodically if my pouch (I call it my accessory) is noticeable, as I've started to wear tighter fitting clothes and emptying it after longer spurts of time.
Also just an FYI...I tried the Adapt lubricating deotorizer and it's crap. Do not waste your money or time trying that and the Hollister M9...just go with the M9. I'm not sure if there's another brand that works better, but I am SO happy with the M9...it's great!
I also use Coloplast, but I'm hooked on the 2-piece click system. I may try the one piece...now that I'm thinking about it...hmmm...
Anyway, yes...WELCOME TO OUR COOL CLUB!!!
: ) Robin