I'm sorry too that you've received such strong opinions for your doctors. The thought of surgery is something scary! My husband and I always joked that I could go the 'cure' route for UC once I was Dx two years ago, but never did we think we would be here now.
I'll also tell you something...though you feel good now, you probably don't realize how hard your body is working to give you that feeling. It may be that your CD may improve after this surgery and you may just feel the best you have in a very very long time. I realized that not only do I feel better, but that I've not felt this way since before my initial flare...even though I was maintained for a short time, I was still on a lot of medication and my body was full of nastiness.
Anyway...do give yourself time to absorb this information and you could always write a pros and cons list. If you would like to know more specific experiences regarding life with an ileo please ask away! I'm glad you've voiced your concerns to us! Keep the questions coming! There are a few of us still in recovery from the surgery...some are extremely recent!
I hope to hear more from you!!!
: ) Robin
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
"Your mind is like a parachute, it only works when it is open." -Unknown